Nice to see another ultrarunner here! If you stick around on the boards, please keep us updated on how you're doing on the Sports and Fitness board. I'm having to take a break from training until I heal up. There are some good threads on gluten-free long-run fueling if you search the boards, too.
Did you ever get the celiac blood panel done, too? I had a negative biopsy -- the GI thinks he missed the damage -- but a positive blood test. The GI diagnosed me based on the blood tests and my symptoms and response to the gluten-free diet. You could also get the genetic test.
Anyway -- something to consider. But there is nothing wrong with diagnosing yourself. If you are OK going on the gluten-free diet, and you improve, then you've solved your own problem. The only reason to get a firm diagnosis -- apart from the psychological/social factors, although they are important -- is to rule out something else. Celiac feels like a lot of other diseases, especially other autoimmune diseases.
No matter what you end up having, you may want to get a full nutritional workup regularly to make sure you are getting the vitamins/minerals you need so you can supplement. Ideally you would need them less and less after going gluten-free for a year or so.
Hello! I would hardly call myself an ultra-runner. I run about 65 miles a week and specialize in the 5/10k, but it's nice to meet another runner on here! I will definitely check out that part of the site and keep you posted! I'm sorry that you're not able to train right now! That's always so difficult.
As for the blood panel, no, I never did that. I went straight to the GI, because it's the "gold standard," and they did the endoscopy. I went gluten-free as soon as I had the procedure, because I was so certain that it was my problem, and I didn't want to wait to start the diet. I'm regretting it now. I absolutely will not do the "gluten challenge," because it really affects my running, and I can't afford any setbacks and do not want to experience those problems again.
Being a competetive runner (and a hypochondriac), I actually get blood tests, CBC, metabolic panels, and my thyroid checked quite often so that I know I am at my very best. The only two things that I have really struggled with in the past were getting my thyroid levels and my iron/ferritin levels up. No matter how much synthroid or liquid iron I was taking, they never seemed to go up. I am really looking forward to seeing what they are now after being gluten-free for 4 months.