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Member Since 03 Jan 2013
Offline Last Active Jan 02 2015 03:04 PM

Posts I've Made

In Topic: Two Years gluten-free, Months Of Abdominal Pain. Anyone Can Relate? Foods?

01 January 2015 - 03:41 PM

thank you. This is what I've been thinking - going grain free, possibly keeping in rice and quinoa for now, and apart from that, meat, poultry, olive oil, veggie but no nightshades, fish. I want to keep eggs in because I love them, but... who knows. Fruit and nuts.


Then I talk about it to the new doc who scoffs and says THERE IS ABSOLUTELY NO SCIENTIFIC EVIDENCE, IT'S A LOAD OF BS.


Well, I want to say but I don't (since it is patently useless) then how come I hear people saying they got better on low carb?

In Topic: Paleo Diet... Did It Really Help?

24 December 2014 - 10:07 AM

thank you for the infos. I'm trying... will have a go at it

In Topic: Pain, Bloating, Even After Strictly Gluten Free

06 August 2014 - 08:35 AM

Andirubes, it still happens to me.. after 18 months gluten-free. To be fair, I have actually been glutened, I think, but it was on my FIRST day of holiday (and then I got glutened again as soon as I got back to Rome having steak and roast potatoes in a restaurant I've been to before. How do I know? well--- the explosive consequences coming in one hour later are proof enough to me).


However, you have been just one month gluten-free. One month! You need at least six months for your guts not to react to any kind of irritation. Think of this: if you had a skin burn from an acid and you stopped slowly pouring acid over it, you'd get better. But anything apart from soothing creams would NOT be appreciated by your burnt skin while it heals. How long? Well. You are young, you should get better sooner than me! But do not get scared if you get sick apparently with no reason. it is, unfortunately, completely normal. But it DOES get better, believe me. It's a lifetime care and you cannot slip but it does get better

In Topic: Muscle/joint Pain When Glutened

05 August 2014 - 05:35 AM

Unfortunately not much. I'm writing to say that it happens to me as well; very stiff neck/shoulders together with intestinal distress, particularly on the left side, with awful jaw stiffness and tension headaches around my teeth and my lfet eye (right side achey too but not the same way). I've had massages, physioterapy aimed at the jaw, and both help. best things are muscle relaxing drugs. Unfortunately it is not stuff you can use for a long time. I took some Flexiban (italian commercial name) which in structure is similar to an anti depressive drug, and it works on the central nervous system. I was told to take it 5 night on, 5 off, then again 5 on and then STOP. It did help during a difficult period.


Otherwise: yoga, massages, sleep. Working with a stiff neck is not nice but being on holiday for a week with a constant tension headache for 4 days because (if I am right) a restaurant glutened me (ever so slightly...) is no fun party either.

In Topic: Menstrual Cycle Becoming Irregular After Being Gluten Free?

05 August 2014 - 02:32 AM

Well, this is VERY interesting.

Since going gluten free, my periods have become irregulars - either 20 days, or 35/38 -. Since I was 47 when DX, and 49 now, I thought "perimenopause" and tried to live with it.

Now I think there are all sort of links between hormones and gluten. There is at least one study about celiac disease and hormones which I heard of - should look it up - Of course we are not presenting a coherent, scientifical body of evidence, but it is strinking all the same.


I really wouldn't know how to explain it, however, apart from thinking that hormones cope with gluten and celiac and when you take away gluten, they have to re-calculate everything...?? There must be a trigger.

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