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Member Since 03 Jan 2013
Offline Last Active Jan 02 2015 03:04 PM

Topics I've Started

Two Years gluten-free, Months Of Abdominal Pain. Anyone Can Relate? Foods?

01 January 2015 - 01:12 PM

I've just made two years gluten-free as a certified celiac and lactose intolerant, and five months ago after a bad bout of diarrhea I had a bloated and painful tummy. The bloeating eventually went away but the pain persists. Normally concentrated in my upper right quadrant but can also move around to upper right and lower right and lower left; it can be a burning or a twisting or a feeling of trapped gas. It is never intolerable or indeed acute, but it is always there, sometimes more, sometimes less. I sleep ok at night.


Since I'm given to high anxiety, I have taken lots of tests (colonscopy, abdominal ecographies) and everything looks normal apart from some small diverticula and my having a LONG and TWISTED colon. Liver, kidneys, gallbladder etc LOOK ok.


I have gone to a second gastro doctor the other week (the first one says he thinks IBS) and he told me he want me to have an abdominal scan with contrast to rule out possible (but, he says, highly improbable) problems linked to celiac disease (refractary celiac... and possible consequences). These guys are both experts in celiac disease here in Rome, and the second one also says probably IBS.


(my BM are sort of irregular, rarely D, but very often spastic and pale)


Well, I AM anxious, but I also have read a lot of your testimonies. Apparently it is sort of normal to develop other food sensitivities on a stressed out gut. I have tried not eating several things but I've never made a "scientific" effort about it. I want to start as of today. Now this second doctor claims that nutritionists are "useless" and that gluten sensitivity does not even exist and that all celiac can get back to eat lactose products once healed and that healing doesn't take more than two years and blah and blah.


Question:  anyone can relate? did you develop OTHER intolerances after going gluten-free, and did they manifest themselves with irregular BM and pain?


thank you all

Paleo Diet... Did It Really Help?

23 December 2014 - 02:32 AM

Hi there. I've been here as Alesusy but cannot find my account... I am now 2 years into gluten free and in the last six months my GI distress (never totally disappeared) has deepened to constant colon pain - never huge but always there. A virtual colonscopy showed diverticulis but apparently they are not inflamed. Question: anybody got definitely better on Paleo diet? Anybody kept having colon pains while gluten free? Thanks

Glutening: Do Your Symptoms Vary?

05 April 2014 - 11:25 AM

Hi guys! I've been absent lately because... I felt much better all in all. I measure my health by the number of medical searches I do on Google and by the number of specialistic visits I book.

The question is: do your symptoms after a glutening vary?


I am not certain that I have been glutened. I was dx in December 2012 and all last year until August I've been feeling better and worse on and off, with periods of great distress and periods of feeling better. In fact, so oscillating my symptoms have been (including ocular migraines and worsening sight, dry eyes etc, yes I know about Sjogren) that I have thought I may have hormonal problems linked to perimenopause and I have actually booked a visit with a gyno/endocrinologist for next Friday.


But all in all, from August till December I have been feeling better. Over Christmas I was in Turkey and almost always slightly sick. And in the last couple of months I've been feeling increasingly worse- again day on, day off... and culminating this last three weeks with a bout of 24 hours D (I thought it was flu) and since last Monday with weird neurological symptoms I never had before: numbness on my left side and cold feelings irradiating from arm and leg (but no loss of sensibility thank God) and HORRIBLE anxiety close to panic attacks, convincing myself I 'm on the verge of dying, etc. You know the drill. I really freaked out. And for this last week my digestion hasn't been good either.


All this MIGHT be hormonal - we'll see - and it MIGHT be something else. Hormones, especially as related to my eyesight, are still worth investigating, but I'm thinking that I've been getting careless and eating outside very often, like four times a week or more, and often banking on the kitchen of wherever I am (friends or restaurant) being careful. Fact is, CC is always a possibility and I may have added SEVERAL instances of CC over time. But if this is the case, I do NOT follow always the same pattern after glutenings. Usually D is the first symptom, but anxiety and weird neuropathies two or three weeks after a D bout is a first for me, I think...


However: plan is, eating as carefully as possible for the next month. I still WILL have to eat out several times for work, or because I will be far from home, but... I'll try being extra extra careful.


Any consideration is welcome!


thank you



(I think anxiety is the most debiliting thing I ever felt, whether it's hormonal or celiac-linked)



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