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nekome

Member Since 06 Jan 2013
Offline Last Active Dec 17 2013 11:30 AM
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Posts I've Made

In Topic: Endoscopy Tomorrow!

06 June 2013 - 05:48 AM

Yes, my GI said based on the blood tests he ran, no Celiac (and this was after a gluten challenge that ran from January to April).  I don't know if this helps but..

 

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In Topic: Endoscopy Tomorrow!

05 June 2013 - 08:48 AM

Hi everyone!

 

So I met with my GI yesterday. He said aside from the slight erosion he saw (which now I have to take Prilosec every day for that) and a small nodule (Pancreatic heterotopia which he said is congenital and nothing to worry about) that there is no evidence of Celiac. He said that even with my Celiac gene, that I don't have to follow up on that. (I thought people would get screened on a yearly basis or something like that thus why I asked about checking on it) No H. Pylori so that's also good.

 

I definitely have to watch the fructose due to the fructose malabsorption but my GI is kinda worried about my diet becoming overly restricted since I told him I'm choosing to eliminate gluten sources as well. (My vitamin levels have been consistently on the lower side). He mentioned I might want to look into the FODMAPS diet and then said I could maybe try to eat gluten again from that? But, I feel that I'm better off the gluten. I ate some gluten last week on purpose to see what would happen and my eczema on my foot itched intensely shortly after. That night I couldn't sleep-- it itched so bad. Getting that checked out by a derm. in July but at this point I guess it can't be dermatitis herpetiformis because of the negative Celiac blood tests and negative biopsy at this point..

 

All my symptoms still persist so.. I have to do stool samples and a colonoscopy to rule out parasites. Fun, fun.

 

So! After all, no Celiac disease. Kinda surprised.. going into all this, especially based on the Entero Lab results considering how out of range I was (Fecal Anti-gliadin IgA      185 Units   (Normal Range is less than 10 Units). I'm not knocking Entero or saying I regret it. I still think it was helpful just confused. Ah well, back the drawing board. :blink:


In Topic: Endoscopy Tomorrow!

29 May 2013 - 09:50 AM

Hi taynichaf,

 

I won't have the full report until next Tuesday, but my GI told me he found erosion and a small nodule. I'm still not sure what any of it means so I'll just have to sit tight until then..


In Topic: Endoscopy Tomorrow!

15 May 2013 - 06:27 PM

no need to post any info on amount of biopsies, etc. since you're going to Columbia, which is awesome btw  :)  did you have any of the blood tests done?  good luck, and let us know how it goes!!

 

I can't tell you enough how fortunate I feel to be getting treatment there! Yes, I was told that my blood tests turned up negative for Celiac but there's inflammation (IgA levels are above ref. range) and my vitamin levels are on the low side (deficient in Vitamin D). But thank you! I will be posting on the results! :)


In Topic: Should I Get A Second Opinion?

08 January 2013 - 07:03 AM

Thank you mushroom and ciamarie, I really appreciate that you guys took the time to respond to my post. It's comforting to know that there's people I can turn to for help with this. :)
I've been gluten free since the biopsy so no rashes at the moment though I have just recently started a gluten challenge and I'm going to eat at least two slices of wheat bread each day for at least 3 months this time. I already made an appointment with the Celiac center for testing.. If it gets unbearable then I can try to bump up my appointment. I'll keep you updated!