We have discussed potential testing for our 16 month old son for several months. However, his very severe symptoms when he is exposed - even CC exposure - are preventing us from moving forward. Our pediatric gastro recommends he be on a diet with gluten for a minimum of 4 weeks prior to testing. Both she and our pediatrician agree that exposure for 4 weeks would most likely hospitalize him because of dehydration and other symptoms. Even "minor" exposure leaves him covered in eczema, writhing in pain (crying for hours at a time) with severe reflux and diarrhea for at least 48 hours, often longer. He also exhibits neurological issues, like walking directly into walls and hitting his head against the floor.
Even though we are somewhat medically conservative, we recognize the need for an official diagnosis. What we ARE questioning is the best time to move forward with the testing. Doing it now would mean that our son would retain few (if any) memories of the testing or the sickness he will certainly endure prior to testing. However, at this age he can't voice symptoms/pains to us.
Any input on this? Has anyone dealt with severe symptoms during the 4-6 week period of gluten intake prior to testing and/or potential hospitalization because of it?