WOW. That inital post, and many after could have been written by me.
i love the title Post-Wheat-Syndrome! just last night at a dinner we (hubby) and i were describing my experience with gluten as similar to PMS form hell that lasts for days, even a couple weeks at a time, before improving.
Funny thing... same thing happens to him when he eats tomatoes during ragweed season
I can`t help you much except to say, isn`t it great knowing we are not alone. I esp. like the fact that after reading some of these i don`t feel like a nut-job anymore. If so many people experience the same thing... it cannot possibly be just in my head can it?
I am sorry Ì don`t have much to offer, as I am so new to this ... but May I suggest that along with the great advice i have read, you may be stressing?
From what I read, you may be (only speculating here) working yourself up a bit over the possibilities of problems, nervousness about starting college (and all that goes with it), fear of being sick again, fear that you will hav esetbacks by cross contamination... etc... all this could be combining so that you feel overwhelmed by it all. See, your brain and body are intricately linked.
I suggest you take it one step at a time, one day at a time, and try to first get in the right frame of mind.
Our thoughts and feelings work with or against our bodies. Problems with one lead to problems with the other and so on. In my experience, the best place to start is with our heart. Take a breath. Relax.
First, work on letting go of the stress and the fears; then work on the body.
I am writing from Canada, so can`t help on Specifics like testing in your country...but I have a suggestion.
Have you looked into or considered other causes for your trouble? My husband was fine one day, down 30 lbs and weak and had diarrhea the next.. then fine again for a while and ... repeat. Everything he ate or didn`t eat seemed to give him trouble. After much testing the dr`s found a bacterial infection called H plylori. As soon as it was treated he started to feel like his old self.
I am just sugessting, food intolerance may be a SYMPTOM of an underlying issue. have you been tested for bacterial infection, viral infection, parasites, or other possible causes?
In my case, the first thing we checked was to make sure i didn`t get hubby`s bacteria, when that came back neg... we began to follow the food intolerance trail.
Any chance you are getting cross contamination? Old toaster, shared baking sheet, common condiments (like butter). For me, those were all things I hadn't given consideration too when I first went gluten-free and it didn't seem like it bothered me. The longer I was gluten-free, the more sensitive I became. I have my own condiments now, my own toaster, and I line bakeware with foil.
Actually, thes past couple weeks that has crossed my mind. I realy would like to get to a point of a wheat freeégluten free home... I think that could very well be part of the problem. I have my own butter dish (well, my daughter and i share but she`s gluten free now too) I don`t use a lot of those things anymore anyway,but I was thinking that when i open a new jar i will separate a potion for our use only. My kids aren`t careful, hubby isn`t very careful. We use the same cutting board, dh likes to use the toaster for me for breads, where I (when I ocassionally eat bread that is) prefer to use the sandwhich press which can at least be cleaned. Maybe its time I go shopping and get some gluten free only items??
I have started to feel better this week, my energy is slowly climbing. I have determined chocolate, refined sugar, any carbonated drink; all are very bad for me. I have been drinking mostly water and black coffee. Eating grapefruit, salads (with homemade oil, vinegar based dressings), chicken, beef, veggies. For carbs I have had sweet potato, carrots, some quinoa(also a protein I know), small amounts of oats, and just yesterday brown rice. I feel the bloating is subsiding, but overall water retension still higher than I would like. Due again to bloating and gas, I have avoided legumes, but find green beans troublesome and last night`s cabbage rolls were not such a great idea Also, I have reintroduced exercise to my daily routine, and some supplements (ACV, Flax oil, Iron and Vit D).
Thankyou all for you help thus far, there is so much to learn and think about; without being able to talk to others who have been through this, I don`t know where I would be!