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Member Since 13 Jan 2013
Offline Last Active Jul 31 2014 09:55 AM

Topics I've Started

6 Year Old Son... Confused By Test Results?

25 March 2013 - 01:15 PM

So, we went to see the pediatric gi today to get C's results (Marsh 3a), and when I asked if I could get a copy of the results she said that I would have to go through the medical records department to get a copy of them because they are only put into his file, not given out. Is this common practice? I have read that I should be getting a copy for my own personal records. Just wondering if anyone else has experienced this? Thanks :)

Scalloping And Redness Seen During Endoscopy, Moderate Positive Ttg--Has Anyone's C...

01 March 2013 - 10:51 AM

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(
Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?
He has been gluten free since Wednesday, just curious of your experiences....
Thanks :)

First Pediatric Gi Appt Coming Up..... What To Expect?

30 January 2013 - 05:50 PM

Hello again,
As I mentioned in my initial post, my 6 year old son had a weak positive ttg iga (negative dgp iga and igg). He has been back for the repeat bloodwork (no results for him or his 11 year old brother yet), and we were referred to a Ped. GI. I received the call today that we are booked for Feb 19..... then I started getting stressed out.... what happens at the initial appt? what hapens if the scope comes back negative--would you remove gluten from his diet?
Thank you, thamk you, thank you! You guys are so great!!

Weak Positive Ttg...

25 January 2013 - 08:45 AM

tTG 25 HI (20 - 30 units: weak positive)
GLIADIN AS IgA: 4 (<20 negative)
GLIADIN AB IgG: 11 (<20 negative

I am aware that there are reasons other than Celiac Disease for a positive tTG, I guess I'm just wondering if anyone has a child that was conclusively diagnosed when the only positive in the blood work was a weak positive tTG?

Sorry about the boring thread..... stresses out mum here *blush*

Stressed Out--What Do I Do Next?

25 January 2013 - 08:07 AM

So, if you read my other post you would be aware that we took our 6 1/2 year old for a blood test to check for celiac disease over Christmas holidays. His results were as follows:

tTG IgA: 25 HI (weak positive 20 -30 units)
GLIADIN AS: IgA: 4 (<20 negative)
GLIADIN AB: IgG: 11 (<20 negative)

Background history is that I have "diagnosed undiagnosed" Celiac disease (I got so sick from the gluten challenge to prep for further testing (i had cut wheat out for about 8 months prior to bloodwork) that I was told by the dr to stop. At that time I had never heard of Celiac disease, but when have experienced cc i have suffered so severely that there is NO doubt what the issue is (chronic constipation, stomach bloating-- I literally look 6 or 7 months pregnant, I fall asleep with 20 minutes and cannot be woken up, etc).
Fast forward to now, we had my youngest tested because he has been having stomach pain when he eats, and I was sure his test would come back negativ because he wasn't having diarrhea (as far as i knew i wad an anomaly). Well, after his test coming back weak positive I did some research and reached out on this site. i found some great info and got some great advice. I went back to the dr who had ordered the same test to be done again in 3 weeks and told us to boost his gluten intake (he doesn't eat as much as the average child because I make a lot of gluten free meals because of myself. Anyway in the 3 weeks of challenge he lost 4 pounds. The dr is pretty sure it is Celiac disease (he said between the bloodwork--which he said is 95% accurate for Celiac--and the weightloss and stomach pain we basically just proved that he has it).

He is boking us in with a Ped. GI (no word yet as to when appt will be), and he just went for his repeat bloodwork.

I guess my biggest concern is what if his tests come back negative (bloodwork and scope/biopsy)

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