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in the middle

Member Since 15 Jan 2013
Offline Last Active Jan 18 2013 05:48 PM

Posts I've Made

In Topic: Severe Symptoms In Muscles And Nerves After Coming Off Gluten?

18 January 2013 - 08:05 AM


I hope you will feel better soon.

Have you had your nutrient levels checked? Do you take supplements for any nutrient needs? Might you be taking in something with wheat in it? I have dealt with many of these in my own life. I don't have the pinprick feeling, but am numb. A doctor suggested that vitamin B12 might be short. I had blood tests and it showed I was short in B12. You might also see if you have any food intolerances causing issues for you.

Check the forum, because I have heard of odd stinging symptoms before.

I really hate the pinpricking/stinging and numbness! It drives me crazy. I'm an artist and my hands and arms are my living. If I can't use them I'm in trouble. I was thinking of having food allergy tests done but I'm not sure I want to know if there are other allergies. It's hard having to watch everything that you eat, I'm sure you know what I mean. It would mean having to add more things to the "can't have" list. I guess if I can't get this under control the way things are at present, I will have no choice but to get the testing done. But I promise it will be with much dread! I just keep telling myself "one day at a time". It gets hard though and my determination wears down when I'm tired from the pain. I will be looking at the forum for posts about the stinging. Thanks!

In Topic: Severe Symptoms In Muscles And Nerves After Coming Off Gluten?

18 January 2013 - 07:46 AM

I do have my levels checked at least once a year and sometimes twice a year. I have had my vitamin D level low before and I take extra D. I also take vitamins that are supposed to be gluten free according to the label. How much to trust labels? My thyroid was borderline low at one point but it came back up. I go next week to my family doctor. I'll make sure all my levels for everything are checked. Thanks saaa-wheat<3 and 1desperateladysaved for replying! Maybe I'll find something out in my blood work. I'll let you both know what turns up. If my info could help someone else, all this wouldn't be in vain!

In Topic: Gluten Ataxia Neuropathy Neurological Presentation

15 January 2013 - 09:51 PM

Hi, I'm new here. I came here looking for answers and have found some interesting things posted here. First I should mention that my GI doc's diagnosis is IBS. However, I was on a gluten free diet for about 2 weeks before tests were done. I was so sick that I could not bring myself to eat ANY gluten/wheat even just long enough to do the tests. I have 3 sisters and 1 aunt that are confirmed with celiac. We also suspect my father has it but he won't listen to us. You know how men can be bless their hearts! Anyway I've been gluten free now for 7 months and the tummy is much better. My biggest problem now is pain in my muscles. Stinging, shooting, tingling, weird pains mostly in my upper body and some in my scalp and even in my tongue! Someone mentioned that maybe I was going through detox since I had been eating wheat for so many years, 52 to be exact. I didn't know if anyone here has experienced these type problems after going gluten free. The doctors I've seen are not very helpful. I think they've written me off as a lunatic. I'm really too busy to be a lunatic! I just need to be well and get on with everything else. I've been really good on my diet, mainly because my grandson who lives with me seems to have the same problem. I really want to help him more than myself. I cook most everything from scratch and am label reader so nothing slips by me. I'm trying so hard...I just want to get better!