Kathryne, your dilemma made me think of this thread:
I've read on this forum and through other research that villous atrophy can be caused by other culprits, but with the symptoms you experience I would want to totally rule out the most obvious thing (gluten) first before moving on. I share your pain in getting a definitive diagnosis. You are young and having that knowledge could be very important for any potential future ailments, and certainly if you have or decide to have children. Be your own advocate, read all that you can, and insist on getting answers.....even if that means doing a gluten challenge . From what I understand, you are working with a very knowledgeable organization. Maybe it's not out of the question that your doc would give you that diagnosis if you asked specifically? I have been under the impression that villous atrophy means celiac, especially since blood testing can be so touchy. I know there are others here who have much more experience and can address this better. Hang in there kiddo!