I'm sure you will get responses from some who are much more versed in this disease than I, but I would hedge a bet that they will recommend you request a full celiac panel be run. I have learned SO MUCH from this forum (and other sites), and one of the things I've read over and over again is that celiac disease and Hashimoto's are very connected. Your symptoms alone would be reason enough for me to push for further testing. Your rash sounds like it could possibly be dermatitis herpetiformis. If you haven't read the posts on that topic, you really should. There are even lots of pictures for you to compare. You could have a skin biopsy done to test for DH, but be sure to read on that so you know where the biopsy is supposed to be taken. If you get a positive result for DH, it's also a positive result for celiac.
Hi everyone, I've been lurking while waiting to hear about the results of my 1...yes you read that right, 1 test for celiac. It was the anti-endomysial test with reflex.
Finally got the results from the doctor. Normal, of course; rated 5 with lab ranges of 0 to 19.
Also, had my thyroid checked again with this new doc from the endocrinology dept (she's really a NP). She advised me that the TSH - which is what my PCP had ordered - is not a reliable indicator when someone is taking Armour thyroid (which I am, of course).
Obviously - and I say this because of how crappy I feel - my free T4 was low (0.7 with lab ranges of (0.8 to 1.7), so she upped my dosage from 120mcg to 180mcg. I'll start this new dosage tomorrow.
Background: I have had Hashimoto's thyroiditis since a teenager (doc noticed a goiter), had my gallbladder out in 1997, 1 month after having my son (who by the way is autistic), lost both parents while still young - mom was 47 when she died from stroke, dad was 59 when he suffered a heart attack (lifelong sufferer of asthma and lost a ton of weight before he died), my sister has Ige food allergies and was diagnosed last year with Hashimoto's, a daughter with ADD, another son with a learning disability (school casts as autistic, but he is much more capable than my older son - I think because I refused to allow him to get the MMR).
Nobody in my extended family to my knowledge has celiac - or any autoimmune diseases that I know of, but of course we're not really all that close...
Symptoms I've been having: diarrhea/constipation - swings from one to the other - brain fog, inability to focus and concentrate for any length of time, lots of very smelly gas, aching joints, muscle weakness and the new joy in my life - a very itchy rash which I developed after my initial doctor visit back in December, 2012.
Can't think of anything else at this moment, but anyway, if it were illegal to be celiac, I would probably be put away for life due to circumstantial evidence! ;-)
Question is: I plan to try the GFD for at least 3 months' time to see if I begin to feel better. What would you do?
Thanks everyone - this is a very supportive community.
Good luck! Keep us updated if you decide on further testing.