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Member Since 20 Jan 2013
Offline Last Active Apr 24 2013 07:38 PM

Topics I've Started

Does Gerd Get Any Better?

18 April 2013 - 12:24 AM

I had GERD symptoms (heart burn, sore throat) everyday before being diagnosed with Celiac's disease.

I have been gluten-free for just over a month and now only get it after sports. For example, if I play basketball I have Heart burn and a sore throat for 1-2 days after.

Is this common and If so, did your GERD get better with time?

Blood Results Back. Doctor Is Unhelpful.

13 March 2013 - 05:04 PM

Hi there all,


I just got my blood results back today and the read as follows:


anti TTG IgA: 75 Units (0-20) HH

Endomysial Ab: POSITIVE A

Comment: These results support a diagnosis of coeliac disease.


My doctor said that it looks like I have coeliac disease, but it's not so bad, so I can eat a little gluten. That goes against eveything I've read on this sight. I thought if you have coeliac disease, regardless of symptoms, you cannot eat any gluten.


What I want to ask is should I ask for a biopsy next or just give up eating all gluten as soon as possible.


Any help would be appreciated.



How To Navigate Living In Asia - Gluten Free

24 January 2013 - 04:35 PM

Hi all,

After a recent hospitalization and confirmed malnourishment, doctors have suggested that I may have celiacs. We originally thought it was crohns, but a colonoscopy showed that my large intestine is looking healthy enough, although a cat scan showed some inflammation in the small intestine.

My sister and aunite are both celiacs and I have suffered from celiacs symptoms for about 10 years.

Anyway, I live in Japan and can't get the proper testing done until I go home in about a month. So, I was wondering if any celiacs living in Asia could give me some advice about living with the disease over here. Any suggestions on diet or lifestyle would be great.

Thank you

Stuck In Japan Without Diagnosis

22 January 2013 - 05:35 PM

Hi all. This is my first post, but before I say anything I just want to mention how fantastic and supportive this community is here. I’ve been reading these forums for awhile now and discovered a plethora of information about celiac disease.

Ever since I can remember I have been suffering from weekly headaches and chronic fatigue. I never thought anything of it until 10 years ago (when I was 16) when I became lactose intolerant and started suffering from a sore throat and nasal-drip (flu-like symptoms) all the time. In later years doctors diagnosed me with a vitamin b12 deficiency, so I started taking vitamin tablets to no avail.

I have always been very skinny no matter how much I eat, but I noticed since moving to Japan, 3 years ago, I have lost even more weight. It seemed every time I was eating pizza or drinking beer I would get flu like symptoms for days after. I would not get drunk, but just feel ill. Also, I would usually be so fatigued after meals that I would almost fall asleep.

Things took a turn for the worst last year after I started drinking whey powder to help gain weight. I became very dizzy and weak and eventually got shingles and am still recovering from phn on the back of my head :(
So, I had a colonoscopy here in Japan recently and was diagnosed with colitis and malnutrition. Celiac disease basically doesn’t exist over here because I don’t think it isn’t in the Asian gene pool, so the stubborn doctors refuse to test for it or even consider it as an option.

Anyway, I go back to my home country in 1 month and can get testing done then. So, my question is should I stop eating gluten until then? I’ve been off gluten now for 5 days and am already feeling a lot better; no more mucus like diarrhea or constipation. And hair isn’t falling off my head by the hand fall everyday now! It could be some type of placebo effect, but I am also feeling a bit more energetic and not suffering from as much brain fog.

I suppose I should add my auntie and sister both suffer from celiac disease.

So what do the wise and wonderful members of this forum have to say?

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