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Member Since 22 Jan 2013
Offline Last Active Jun 17 2013 11:55 AM

Topics I've Started


17 June 2013 - 11:29 AM

My 10 yo daughter is supposed to go to a sleepover this weekend.  I was OK with it, but now I am not sure.  She was dx'd in January and has been doing great.  However, we were staying at a hotel for a softball tournament and I thought I did everything in my power to avoid any problems, but she ended up with a stomach ache all 3 mornings.  This is the first time she has had a stomach ache since going gluten-free.  The mom of the friend says she is gluten intolerant and can manage the disease for one night. My concern is the cross contamination.  My daughter doesn't know about the sleepover yet.  I don't know what to do.  

Feeling Discouraged

27 January 2013 - 10:31 AM

My 10 yo daughter was diagnosed a week ago. She has been on the gluten-free diet since that time. I have been extremely careful about cross contamination. She has been eating mostly whole foods. I have read every label and checked websites for gluten-free confirmation. She is either drinking lactose free milk or using lactase.

All that being said, she is in as much pain as she was before the diet started. There has been no difference. Her abdominal pain has consistently been a 9 out of 10 for 8 weeks. She cries all the time because it hurts so much. Nothing helps with the pain. She never had stomach aches prior to this. She never had any problem with any foods. She was just a healthy, happy kid doing the things healthy, happy kids do.

I feel like I am never going to get my little girl back, that this pain is never going away. I plan on calling the doctor in the morning to see if they have any suggestions.

I don't know how much damage there has been to her small intestine. The endoscopy showed the scalloping and the biopsy confirmed celiac disease. I hear so many different ideas as to how long it takes to get better. Her only symptom has been this abdominal pain. The doctor still has her on Protonix and said she needs to be on it for another month or so.

I just don't know what to do anymore. I just want her better so she can play softball like she is capable of and to be vice president in her 4-H club which will be starting up again soon. She cries through softball practice. But she still wants to and needs to practice. It is a travel team.

Thanks for listening.

Just Diagnosed. How Long Till She Feels Better?

22 January 2013 - 08:26 AM

My 10yo daughter was officialy diagnosed yesterday with endoscopy. She has been in severe pain for 7, almost 8 weeks. The pain has been made worse with the air introduced with the endoscopy yesterday, but that is improving. We started the gluten-free diet yesterday. She is still crying all morning. Plus she has a headache. I just need to know this will get better. I can't take the crying and the clinging anymore. I homeschool her and it is still difficult to get in a day of school. We also started with lactaid yesterday as well as a precaution.

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