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uglyhen

Member Since 23 Jan 2013
Offline Last Active Jan 24 2013 11:59 AM
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Topics I've Started

Is Diagnosis Necessary?

23 January 2013 - 02:38 PM

Hi all, I am very new to this site as well as the celiac and gluten-free world. I have not been "officially" diagnosed. Apparently a diagnosis can be very hard to get. I have had the worst symptoms since last March following the birth of my second child. I have been seeing a gastroenterologist. I've had an endoscopy, colonoscopy, ultrasound, small bowel follow through all completed. All results within "normal" ranges. What gives? I've had what I've called IBS since childhood. My symptoms that have become extremely evident over the past year are as follows:

Diarrhea
Vomiting
Abdominal pain/cramping
Extreme bloating
Excessive gas
Geographic tongue
Headaches
Fatigue
Chipping/cracked teeth
Psoriasis on my hands and upper thighs
Intestinal sloughing

I've had most of these symptoms for a long time but they have all become part of my daily life in the past year. My PCP is clueless. He is very kind but just wants to write prescriptions for anything under the sun to mask the symptoms. He gets upset when I don't fill the prescriptions. I don't want to cover up what is going on, I want it solved and treated properly. I don't think there is anyone in my family with celiac disease so my doctor is quick to throw it out the window because he says it is hereditary. During the colonoscopy they did do a biopsy for celiac sprue(sp?) but that came back normal as well. I can't live like this any longer. I have been so down and out. I have two young children and I never intended on parenting from the couch! So upon doing my own online research and reading about celiac disease, I decided to give gluten-free a try. Within 24 hours the bloating and stomach pain vanished! Within 48-72 hours I was feeling like a whole new woman. I seriously have not felt this good in a loooong time! Now, I'm only on day 8 of my gluten-free experiment but I can't believe how good I feel. I'm being super vigilant about what I put in my mouth. I've also been keeping a food journal to show my doctor. My PCP told me to go with my gut (no pun intended lol) and follow the gluten-free diet to see what happens. I understand now further testing wouldn't have true results because I am no longer eating gluten.

My question to all you seasoned celiacs or parents/family/friends of such: What would you recommend I do next? And is an official diagnosis necessary? If I feel better and symptom free following a gluten-free lifestyle, is that good enough? At the end of a certain time, a month or 6 week+ gluten-free, should I reintroduce gluten to see what happens? Please let me know what you all think, I'm open to any and all advice. Thank you so much!