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nostalgic

Member Since 28 Jan 2013
Offline Last Active Jun 03 2013 05:18 AM
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Posts I've Made

In Topic: Cyrex Labs--Do I Really Have A Gluten Intolerance?

24 March 2013 - 07:59 AM

Thanks, I had read what they said about Enterolabs/Cyrex, and that is what made me worried.  I guess I will give it more time, see if I see any improvement after a long period of time (at least 6 months) and pay attention to whether or not I ever experience "glutening" symptoms.

I think I've had all the proper testing done, like I said, I've had a biopsy and what I assume to be the standard bloodwork around 4-5 times.


In Topic: Cyrex Labs--Do I Really Have A Gluten Intolerance?

23 March 2013 - 09:17 AM

I left out some info from my original post but didn't get a chance to edit it.

When I first developed GI symptoms back in 2009, I had the celiac panel done probably at least once (I have now had it done probably five times -_-).  I had an endoscopy not specifically for celiac, that is when I got diagnosed with GERD.  My gastroenterologist did a biopsy for celiac which was negative, although apparently I had flattened mucosa that made him suspicous.  I get my thyroid tested pretty often because of my history.  I have always had good results and even see an endocrinologist occasionally.  I agree that it is probably hormonal for a lot of it.

 

I have been on every type of birth control imaginable: minipill, low dose, normal oral contraceptive, the ring, Mirena, you name it, I've tried it.  All of them have horrific side effects for me, I simply cannot tolerate birth control.  It is not an option.  Instead I have had the two surgeries (one from a top surgeon in Atlanta) which helped a bit with the pain, and I take other medication like Zofran during my actual period and just lay low...


In Topic: How Do Your Glutening Symptoms Compare To Pre-Diagnosis Ones?

21 March 2013 - 03:41 PM

Thanks everyone for your responses, it looks like it really runs the gamut.  It looks like things get less chronic and more acute though.  I'm sure I'll be back at some point to add how glutening compares for me.  :(


In Topic: Ncgi And Gluten-Free Substitutes?

12 February 2013 - 02:02 PM

Thanks everyone for the thorough responses :) That makes a lot of sense, I will probably keep a food diary just to see if any new sensitivities appear, but I probably will only be eating a gluten-free substitute or less a day. I definitely plan to eat a lot of Tinkyada since it's easy to make some pasta and I think it's pretty yummy (and so does my gluten roommate--she can't tell the difference). I'm also a big fan of Van's waffles since they are so easy to make. I may go easy on any snacks for a bit, or stick to normal gluten free ones (fruit, cheese, candy :o :P, etc).

Sorry to hear about your metabolism and complications from such a long period of going undiagnosed. I'm actually fairly significantly underweight, mainly from other illnesses :/ so putting on weight would definitely be a positive. I'm keeping my fingers crossed no other intolerances pop up, but I'm definitely going to keep my eye out.

In Topic: Vomiting Phobia And Glutening?

30 January 2013 - 06:50 PM

Generally speaking, it's not possible to rule out Celiac. The testing process is too
unreliable. So don't assume that just because your tests were negative, means you
don't have it. The other AI diseases you speak of argue strongly for the idea that
you probably do.

Also, one of my symptoms was violent, persistent, unremitting nausea- hard to
describe exactly horrible that was, it lasted for six months straight. I do not have an
actual fear of vomiting, but I will sure go to some lengths to avoid it..... I have been
gluten free for eight years, and on the rare occasion that I am glutened not only have
I never thrown up, but the nausea rarely returns, as well. So you have that to look
forward to! :D


I'm so sorry you had unrelenting nausea, I can completely relate, and honestly I prefer pain (no matter how severe) over horrific nausea which I too have suffered from pretty consistently. Between that, IBS (or what they decided to call it) and GERD as well as hopefully alleviating symptoms of other AI's and preventing more from springing up, I am excited to see what going gluten-free will do for me in the long-term.