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NodakMom

Member Since 30 Jan 2013
Offline Last Active Mar 27 2013 04:53 PM
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Topics I've Started

High Alt And Ast Even After Gluten Free For 6 Months

04 March 2013 - 08:54 AM

My 19 month old son was diagnosed with celiac in September 2012 at 13 months.  I nursed him until 16 months when he self-weaned (too busy chasing his big brothers.)  At the time of his diagnosis, his AST and ALT were quite high (in the 400s.)  We immediately went gluten free and his symptoms were better within 36 hours.  We thought, "Whew! Crisis averted, thank goodness we caught it so fast."  He's been happily gluten free since Sept 2012.  He has no real health issues since going gluten free, other than dry skin and mild rashes that a lot of celiacs experience even when off gluten.

 

Fast forward six months when we had his enzyme levels checked again this month.  His ALT and AST were worse, this time in the 500s.  The pediatric gastro had him tested for multiple things (Muscular Dystrophy, alpha 1 antitryptasin deficiency, Hepititis and even Lupus.)  Thus far, every thing has come back negative, except the HLA molecular test for Celiac and lymphoma. 

 

Has anyone on this board experienced a child's symptoms improving and yet had persistently high ALT and AST?  I'm concerned there is some underlying reason for the elevated enzymes; we're even considering taking him to Mayo.