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Member Since 01 Feb 2013
Offline Last Active Apr 12 2013 05:29 PM

Posts I've Made

In Topic: My 12 Yr Old Son Has Glutant Intolerant Symptoms But Diagnosed Psychological.

06 April 2013 - 08:36 AM

RAST testing came up weak positive for wheat, soy, peanuts and corn. The skin prick test just had a tiny red dot at each of those spots, the nurse said it was a negative reaction. Although now that i think about it....a couple tree pollens that came up small dots were retested by injection and he ended getting hives from those.

In Topic: My 12 Yr Old Son Has Glutant Intolerant Symptoms But Diagnosed Psychological.

06 April 2013 - 04:49 AM

Went to allergist. My son was tested for food and environmental allergies. Enviromental testing came back he's allergic to grass, most tree pollen, cats, dogs, ragweed, etc. The foods tested - corn, wheat, soy and peanuts came back negative. Does that mean he is definitely not gluten intolerant? He also went in for an ultrasound on his GI tract and everything came back normal.
He still has stomach pain and is taking miralax daily. Could he still be glutant intolerant even though test after test has been negative? Anyone have these same results and went on a glutant free diet anyway and felt better?
My next step is glutant free diet and see what happens.......

In Topic: My 12 Yr Old Son Has Glutant Intolerant Symptoms But Diagnosed Psychological.

14 March 2013 - 03:18 AM

Update: after colon clean out my son had two good weeks. One week was school break in which he was tutored and the next week he actually went to school. Now he's back to feeling crappy again and stuck at home. Hydrogen breath test came back negative. Still waiting to see allergist on April 1st. In the meantime we are working with the social worker at the hospital and adolescent medicine to keep the peace with the school and to help My son cope with his pain. For a while the school called me almost daily to remind me that my son is illegally excused from school. Like i needed to be reminded. Not getting much help from pediatrician, there's a big surprise. I remain hopeful that in a couple weeks we will get some answers, my son will be on the mend and we can put this all behind us.

In Topic: My 12 Yr Old Son Has Glutant Intolerant Symptoms But Diagnosed Psychological.

24 February 2013 - 08:39 AM

I can't really address the tutoring or home schooling.  Daughter wants to home school like mad but I think it's a bad idea for her.  I can address the psychological aspect though.  I took her to the walk in clinic.  I can't remember all of what was wrong with her but I do remember her complaining of severe ear pain.  Dr. didn't look in her ears but said since she didn't feel up to going to school or dance class she was obviously depressed and needed counseling.  She was going to put in for a referral for her.  We both just sat there dumbfounded!  In fact the Dr. same into the room looking and sounding depressed.  She was literally dressed in all beige from head to toe.  Had a hangdog look on her face and sounded very sad as she talked to us.
Two or three days later, I took daughter back to the walk in clinic because by now she was literally in tears from the pain.  And she's not normally a crier.  Saw a different Dr. who freaked when she looked in her ears.  She said they were both raging with infection.  Wanted to know the name of the Dr. that daughter saw.  When I told her, she said that she didn't know where this woman came from.  She was not one of the regular Drs. there and thought that they brought her in from some other location.  To disregard what the other Dr. said and she would cancel our referral because she didn't think daughter was depressed at all.
But our frustration?  She keeps getting sick.  Her dad and my mom both think she is faking illnesses to get out of school.  I do not think so.  She certainly isn't enjoying her time here at home.  Either sleeping the day away with a fever or spending most of her time on the toilet or hunched over a bowl.  The Drs. keep telling us that is a virus.  And it is true that when she stays home and is not in contact with others like she is at the school or the dance studio, she tends not to pick things up that make her sick. 
She has been to the gastroenterologist twice.  He thinks it is a food allergy or intolerance.  And it could be.  She has multiple food intolerances.  She was tested for food allergies but only to those foods that we knew she was intolerant to.  Nothing else and those tests showed nothing.  Gluten and wheat used to be issues for her but they seem not to be now.  We just don't know what the culprit is.  And of course since I bought the new notebook to start another food diary, she hasn't been sick at all.
There is another girl of her age at her dance studio who is home schooled.  Perhaps not so much because of her illnesses but because she dances and assists in various classes far more than my daughter does.  But...  She does have stomach issues almost all the time.  She was told at first that it was a dairy allergy and then told it was not.  She wound up going to my daughter's same gastro and he told her she was depressed and needed to be on a med for that.  I don't think this girl is depressed.  But she is very frustrated and tired of not feeling well.
My daughter and this other girl are 14.  Unfortunately once they reach about age 12 and up, some Drs. will just try to pass symptoms off as physchological and specifically depression.  That to me is greatly annoying.  I even had a teacher send home a note to me telling me that she thought my daughter was depressed,  What really was going on there was that my daughter was angry and frustrated again and again by this teacher who kept trying to reward her with foods she couldn't eat.  And forcing her to touch foods that she shouldn't, like Twizzlers or pizza for some sort of math thing they were doing.  I really thought this teacher would get it because she told me that she had a dairy allergy.  She also added that it was fine because she could have goat's milk and cheese.  I told her that my daughter and I could not even have these.  She just sort of shrugged.  I can not tell you how many times I have spoken to or written to teaches and told them things like...  Please do not give her food.  Please do not make her touch dairy, or wheat, or eggs, or...the whole rest of the list of things she is intolerant to.  But the still make her do it and tell her they will fail her if she doesn't.
I hope you can get your son's problems sorted out.  We're still working on ours.

It is very frustrating at the least. I just wish doctors would just listen to what us parents have to say. We know our children better than anyone. Do the tests we ask for, and if we are wrong then proceed on what they think should be done. It would eliminate months of seeing specialists that are not needed. We are in our third month of bouncing around from one doctor to another and the very doctor that my friend recommended for my Son in the very beginning is the one we are seeing April 1st. It just makes me so angry! We could have avoided all this.......my son could have been tested and back to school already. Instead he has missed 40 school days. He has been keeping up with most of his work and some he has been exempted from. The teachers have been very helpful theses past few months, I just wish I could say the same for the principal, nurse and school counselor. I would have thought the nurse would be more sympathetic since she has a child with celiacs.
Hopefully this next doctor will get to the bottom of all that's ailing my son and not give up until he does. I want my son to be able to go back to being a kid again and not have to worry about what's wrong with him and wonder why many don't believe him that he really is medically sick.
Good luck with your daughter, I hope you get the answers you need to help her. Thank you for replying to my post. It's therapeutic talking to people with the same frustrations.

In Topic: My 12 Yr Old Son Has Glutant Intolerant Symptoms But Diagnosed Psychological.

23 February 2013 - 06:56 AM

Lots has happened in the past week. Here's an overview:
Results back from baseline bloodwork - negative
Referred to GI doctor and scheduled appointment
Met with counselor (2nd and last visit) - son doesn't like her. Doesn't say anything to help him.
Met with school - Threatened to call CPS. Bring it on we have nothing to hide, he is sick.
Met with GI doctor - ran more blood work and did an X-ray. Scheduled a hydrogen breath test for 3/11.
Met with pediatrician finally - thought that since she has never actually seen my son throughout (just diagnosing him) it was a good idea to Make her own diagnosis. Really? Anyway, she was pushing "adolescent medicine" therapy and medicine. We took the referral and prescription for the medicine. My husband thought it was best to be compliant at this point. That way they can't say we were uncompliant just in case they are right.
GI doctor called with results - his X-ray showed that his intestines were full with stool. Some of the bloodwork came back and showed my son was positive for having a wheat, corn, soy and peanut allergy. Plus a slightly elevated thyroid. Mothers intuition was right!
Went to pharmacist picked up medication to clean him out. Started on Thursday. He has already lost 10 lbs.
Sent the school an email of the results of the GI visit. It felt so good!
Pediatrician called with a referral for an allergist and adolescent medicine.
Adolescent medicine appointment scheduled for March 1st. Will cancel if goes back to school after break.
Will schedule appointment with allergist on Monday. They closed at 1:15 on Friday so I was unable to get appointment.
I feel so happy that we are finally getting to the bottom of his illness. A weight has been lifted off my shoulders. I'm starting to feel happy again. It takes such a toll on us parents as well as the kids. Thank you everyone who responded to my posts. I appreciate your advice and kind words. I will reply after my son has had his breathe test and allergist appointment. Thank you again!

Scheduled allergist appointment for my son. Unfortunately they could not get him in until April 1st. We are willing to wait because I've heard alot of good things about this doctor. He goes to bat for the patient and won't give up until he finds out what is making them sick. The doctor is an immunologist. The other amazing thing is that this doctors wife is my mothers cancer doctor.

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