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MsMarginalized

Member Since 01 Feb 2013
Offline Last Active Jul 09 2015 11:22 AM
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Posts I've Made

In Topic: Travel

07 July 2015 - 06:45 AM

For what it's worth, both my son & I "washed out" of the Alvine phase III test of the new Celiac drug, what a pain it is to go through all that to be dropped because we are "TOO HEALTHY".

 

Guess what? If you go look in depth on the U.S. government website that covers drug testing & see what they are testing...and read the labels on the commercially available now supplements...it's the same!  Phase I & II did show promise and there's a reason it's into the end of Phase III. I just SHUDDER to think what the co$t of THAT Rx is gonna be!


In Topic: Military And Celiac

07 July 2015 - 06:28 AM

The U.S. Military is a bit of an anomaly. They say they want the best & will help their troops....but it ain't always so!

 

I was in a Celiac Support group. One of our members was an Army reserve officer on active duty. He just got diagnosed and was having a dickens of a time with rations out in the field. Everything seems to rotate around WHEAT for the U.S. Army. A lot of the MRE's are pasta based and then when they shipped in "fresh" food, it was often.....SANDWICHES. He told us about one female enlisted soldier who pressed the diet issue and received a discharge. He was bidding his time, hoping to be able to climb the chain of command and help real change happen.  I don't attend that group anymore, so I don't know how he's doing with it.

 

edited to add: I guess this falls into the beyond diagnosis into life situations category, sorry if it's posted in the wrong place.


In Topic: Anxiety/recovery

07 July 2015 - 06:06 AM

Wow, y'all!  I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years.

 

I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac. 

 

I realize how Celiac is a RANGE (maybe like Autism?) my Celiac can be bad when I get gluttened but not to the degree that some folks have. 

 

Maybe some of the things Jennifer does & has found can help? (if we are allowed to put in links, I would put in one over to amazon.com....that's where I got a kindle version of her book)  some forums I've been on don't allow that & I'm too new here to rock any boats.....


In Topic: New At This...

07 July 2015 - 05:57 AM

Education is the best advice ever. Just be careful where you get it from. I just finished reading Jennifers Way by Jennifer Esposito. Another good author is Elizabeth Hasselbeck. Your public library probably has most (if not all) of Elizabeths books (she has a few). There is a lot here on line, too. Just be careful.

 

My 2cents for your first little bit of time after diagnosis: shop the outside of your grocery store.  Fresh fruits & vegs., fresh meat, seafood. Lightly steam the vegs & don't over-do the heavy fiber ones.  Be careful with dairy...sometimes folks find that they are sensitive at first because of the damage done by the disease.  I'm lucky that there's a gluten-free bakery w/in 30 miles of my home. If there's not one near you, poke around here at the Glutenfree mall. Also check out same brand items on Amazon/other on-line retailers.

 

Good luck & God bless.

 

edited to add: there are a few gluten free bloggers out there...poke around them. Some aren't my cup of tea, but since you can read their previous postings, you can see which one's know what they're talking about.


In Topic: Do I Need To Purchase Gluten Free Makeup, Soap, Shampoo?

07 July 2015 - 05:49 AM

Burts Bees lip balms are all gluten-free as far as I know. I've also found that the higher end department store stuff is all going gluten-free now (but who can afford $35-$50 a tube for lipstick???)

 

I had an extraordinarily BAD reaction to hair coloring right before my diagnosis. I used that as an excuse to stop coloring my hair. I'm glad I did, the money I'm saving from THAT is just going into EVERYTHING ELSE I have to do gluten-free!

 

Like others have said, the Celiac reaction is in your gut...so supposedly only if the item is going into your mouth somehow will it "matter". I've found that RETAIL THERAPY helps me sometimes and getting into the habit of reading labels & looking for gluten-free is only a good thing. If it makes you feel better, then do it. It can't hurt for something to be gluten-free if it doesn't have to be but can REALLY hurt if it's not and it needs to be!


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