JessF

Thanks for the reply Mushroom. I have headaches, muscle and joint pain, fatique yet wake up numerous times at night, IBS, GERD, constipation, fibromyalgia diagnosis,the list goes on...
I gave up gluten for a couple days and began to feel better so no matter what the biopsy shows I will be gluten free.

So sorry you are going through that! I am also waiting on the endoscocpy while glutening myself, UGH! I have done some research and alot of people say to drink tons of water, make ginger tea, eat healthy foods (fruits and veggies), eat healthy fats like olive oil, avacodos all to help with the glutening and to flush the toxins out of your body. I have my endoscopy in three days so I only have to torture myself a little bit longer. I bought some ginger chews and eat those after I eat gluten which I am only doing 1 time a day, the bare minimum. Good luck! I am sure others whom have more experience than me will chime in.I am totally new to this whole celiac/gluten free life:) Just wanted to let you know that you are not alone!

Hi there,
I have some wierd finger/hand symptoms too. My palms are red also. My hands go from being cold and wrinkled to warm and swollen like you describe with a waxy type appearance. They hurt and are very sensitive too. I am hoping this is celiac which I have my endoscopy in a week to confirm the diagnosis. I have also been borderline hypothyroid after having thyroiditis two years ago. I am waiting on the celiac diagnosis and then will get my bloodwork done again for hypoT to see if I need to be on medications for that. Good luck!

Jess

Yep, definitely celiac symptoms. I had many of those myself.

I also had the cold with a borderline TSH for well over a decade. i was sure I had hypo problems but I was always told that I was within range. I did't realize that the range up here was too broad (0.2-6.0) and that the TSH doesn't tell the whole pictuure. If I had had more thyroid tests, and done my own research, I am confident that i would have been treated 15 years ago and would have felt much better in my 20's and 30's.

Many borderline TSHs (especially consistant ones) can indicate hypothyroidism with the presence of symptoms (like cold, fatigue, achy body, dry skin and hair, acne, thinning hair, constipation). Have your doctore check:

• TSH - should be near a 1.
• Free T4 and Free T3 - are the available hormones in the body and should be (ideally) beween the 50th and 75th percentile of your lab's normal reference range.
• TPO Ab - these autoantibodies should be non-existant; if present, they could indicate Hashimoto's disease

Good luck with the endoscopy. Make sure they take lots of samples; I've heard 6-8 is often enough. If they don't take enough samples, and the damage is patchy rather than uniform, then the doctors might miss the damage... and doctors seem to get really confused when one test is positive and another test is negative...

And good luck with the gluten-free diet when your testing is complete. I hope you feel better!

Thanks Nicole! I am sure I will be on here alot once I get my official dx! I am going to go gluten free anyway just from the couple days I mistakenly did it I felt so much better:) I will have my Dr. do the test for hypo too. He did test for all those things you mentioned and I was always just in the range for everything except my TSH which was a bit above it .

Oh I forgot to add I am constantly congested, and get frequent sinus infections. I am allergic to many things but have controlled my environment and have gotten allergy shots for 4 years now. I have also been getting gassy from dairy so I have switched to almond milk and I am doing much better with that. I do still have a yogurt for breakfast and seem to do fine with that. Thanks again for any responses:)