Trying2GetHelp

After over FIFTY years, I'm being tested for celiac disease. Over the years, I have emassed so many symptoms and diagnosis's that would make anyone groan, let alone question my sanity.

 

Until someone recently started putting the pieces together, I would never have considered this. However, one of the longest and worst symptoms (that goes all the way back to infancy/toddlerhood), is my inability to sleep.

 

Lately, people were blaming my "other" problems on sleep deprivation, but didn't seem to realize (or hear) that I had been living like this my whole life. There is a difference between having a life-long sleep disorder and suddenly feeling exhausted and unable to continue through the day.

 

I've been considering having a WHY THE HELL DIDN'T ANYONE LISTEN TO ME? day ... where I can bitch and scream and everyone and everything.

 

At first, I thought it was the last 25-30  years; now I realize it's far more than that ......

 

My sleep problems were passed on to my son; but not the gluten intolerance.

Oh my gosh. I'm just being tested for celiac disease, but I've been complaining of night sweats and hot/cold intolerance (can't regulate body so entire temperature setting is comfortable) for years. I feel warm so I turn on a fan, then I get cool so bundle in a blanket, then I get warm so I turn the fan of, and on, and on, and on, etc.

Just as I started typing, my hands started itching and swelling again. I've been eating potato chips with a friend, but they say "Gluten Free." ??

Hi all! My name is Rebecca and I found out I had celiac disease about 2 months ago. I was having a good amount of the symptoms: constipation, migraines, dizziness, confusion, hypoglycemia, nausea, fainting spells, seizure like symptoms, etc. The doctors had told me that by six weeks everything will be back to normal. Well six weeks have come and gone and I am feeling worse than ever. I'm not sure if the symptoms I am having are common or not and I'm not sure what to do about them. I get extremely exhausted to the point where I can't get out of bed and after doing minimal tasks throughout the day become even more exhausted. I keep having these chills that hurt almost, I am freezing but my skin is warm or hot. It's a freezing cold that feels like it's coming from my bones and nothing can warm me up. I keep getting these awful pressure headaches that make my vision blurred. I become extremely week throughout the day. I also seem to get lost easily, meaning I can't remember things that I have been talking about at the time or half way through a sentence my thought just seems to stop. I've read that that can be a symptom but I'm not sure about it. The constipation keeps getting worse as well. I also feel like I have gained about 20 lbs. in 5 days. I feel extremely bloated all the time. I have also been having sharp stomach pains and extreme nausea. Sometimes after eating something gluten-free I have a reaction to it as it if was packed with gluten, I get nauseous and feel like I need to throw-up (but I never do because I really do not like throwing up to the point where I will do ANYTHING to not). I also can have these random stabbing pains in my chest. Sort of like the pinched nerve feeling but it's a little different, it's in the right side or left side of my chest and then that whole side including my arm will go numb for a few minutes. I think I have been pretty good at keeping a gluten free diet but I am sure there are more slip-ups than I know of because I still don't know everything 100%. Any help or suggestions would be greatly appreciated! Thank you so much!

Hi! I just found this board! Your symptoms sound just like mine, although I am just now being tested. I'm down to being able to stay awake 2 hours a day, then a 2 hour nap, etc. I've been complaining of all your symptoms for as long as I can remember. I get hot and cold at the same time; my body can be burning up, but I'm cool to the touch. OR, I can be SO cold, but my apt. is 72d F. I forget where I'm going, what I'm doiing. I forget what TV show I've been watching when the commercial comes on. I've begun to feel like I'm living in a different universe, because I'm not even sure of what is real and what isn't anymore.

I'm not crazy, I'm just frustrated .... but maybe this IS my problem. I hope so.