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Member Since 13 Feb 2013
Offline Last Active Sep 10 2013 12:39 AM

Posts I've Made

In Topic: Diagnosed As Gluten Intolerant, Is There A Correlation With Mast Cell Disorders?

13 February 2013 - 08:34 PM

If the mastocytosis you're referring to is the rash that pops up after gluten exposure I would first consider dermatitis, eczema, psoriasis or unfortunately dermatitis herpetiformis. I personally seem to have dh and dyshidrotic eczema. Thrilling.

If they (a dermatologist) is going to biopsy the rash for mastocytosis you need to request a separate biopsy to determine dh. They can't use the same sample used for other tests like mastocytosis. Read this: http://www.arupconsu...petiformis.html

The good news about the rash may be, if biopsied correctly and it is dh, you will finally put the question of celiac v. ncgs to rest....since dh is celiac disease.

Hmm... That is certainly something I need to look further at.

The reason mastocytosis is on the table is not due to the acne-like rash, but the fact that my most recent stomach cramps/pains have been disproportional in severeity (I will nearly loose consciousness from the pain) to the possible gluten I might have been exposed to (I am very vigilant regarding my diet), while at the same experiencing throat itching, hives and lightheadedness/dizziness.

In Topic: Diagnosed As Gluten Intolerant, Is There A Correlation With Mast Cell Disorders?

13 February 2013 - 07:18 PM

Hey! Welcome to the Club! With a positive serologic test....consider yourself diagnosed with Celiac Disease. Biopsies can be very inclusive for sure. And with a positive dietary response in support. Again, welcome!

Thanks! Yes, so I have been told, it's a bit confusing to know under which classification one falls...

Many celiacs or those with gluten sensitivity have various skin conditions. Autoimmune diseases are associated with, and are sometimes skin diseases. That said, I don't think demographic urticaria is considered an autoimmune disease. There is a celiac rash called dermatitis herpetiformis, characterized by a fluid-filled itchy lesion and rash. It looks different person to person.

If it is dermagraphia it may respond to homemade cromolyn cream: http://chronichives....n-cream-recipe/

Many people find that after removing gluten, "things happen". I don't think a good reason has been found, other than its part of a healing process, and perhaps once gluten (the antagonist) is removed your body has resources to do other things...like break out in a rash.

The increased sensitivity to gluten cc is normal, unfortunately. So is discovering you have a leaky gut (and other temporary or permanent food intolerances). Gluten issues/autoimmune diseases, unfortunately, seem not to travel alone very often.

The dermagraphia for me is not really an issue in itself, as I didnt even notice it until it was pointed out to me (probably because it is so recent). I suspect what I might be suffering of is systemic mastocytosis.. or something of that nature. Since I have had a combination of symptoms that cannot be solely attributed to gluten intolerance/celiac disease.

I am certainly relieved to know that Im not an odd case for having strange things "happen" to me after addressing my gluten sensitivity, after going undiagnosed for so long and having my doctor tell me its "all in my head", it really is a relief to know that I am not the only one without clear answers to everything :)

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