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miss.west

Member Since 13 Feb 2013
Offline Last Active Sep 10 2013 12:39 AM
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Topics I've Started

Diagnosed As Gluten Intolerant, Is There A Correlation With Mast Cell Disorders?

13 February 2013 - 04:38 PM

Hi all,

I was diagnosed with a gluten intolerance this past fall (positive serology, but inconclusive biopsy), and I have been on a gluten free diet ever since. All was fine until I recently began to react a lot more severely when exposed to gluten, I went from have the "regular stomach issues" to having such extreme stomach pains/cramps that I nearly called for an ambulance. In addition I will have something that looks like acne all over my face for the following 7-10 days. I will also get extremely fatigued for several days following, as well as lightheaded. I also appear to react to much smaller quantities of gluten, initially I would be fine eating something that was prepared on the same surface as something that contained gluten, but now cross-contamination is a big problem. More recently I have also begun to suffer from itchy skin and throat, which is why I was referred to see an allergy specialist, where it was determined that I do not have any food allergies. Now it appears that I might have some issue with my mast cells, I found out today that I have Dermatographic urticaria, and I am being tested now to see if this somehow correlates to my increased stomach pains.

Has anyone had a similar experience? Is there a correlation between gluten sensitivity and a possible mast cell disorder? Is it possible that I my gluten intolerance has been just "hiding" a mast cell issue? I obviously don't expect anyone to have any concrete answers on the issue, but from what I can make of it, there does not appear to be a whole lot of information about this out there... which is why any personal experience on the issue would be appreciated :)


Thanks!