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chairtechno

Member Since 14 Feb 2013
Offline Last Active Mar 17 2013 12:55 AM
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Posts I've Made

In Topic: Negative Blood Test But My Fantastic Doctor Has Referred For Biopsy Due To Sy...

16 February 2013 - 03:16 AM

Eek.

Just found out my waiting time to see a gastroenterologist could be 74 days. I can understand why some people decide not to wait it out now.

Nevertheless I'm gonna hold on. I've not tried a gluten-free diet at all so I have no idea yet whether it might help yet.

Cheers for the advice everyone.

In Topic: Negative Blood Test But My Fantastic Doctor Has Referred For Biopsy Due To Sy...

14 February 2013 - 01:43 PM

Yeah, I'm pretty much loading on gluten - including it in as many meals as I can.

I feel terrible, but then my symptoms have been pretty constant so it doesn't make much difference at the moment - I don't really know any different.

I'm not worried at all aout the endo. I'm gonna opt for conscious sedation as I had that when having some teeth removed and I found it helped loads. I'm so phobic of dentistry I shake too much to be able to receive a filling safely without being sedated.

I'm not really scared of the endo and I think I could manage it without sedation, but I'm gonna go for it any way because it certainly won't make things worse…

In Topic: Negative Blood Test But My Fantastic Doctor Has Referred For Biopsy Due To Sy...

14 February 2013 - 01:22 PM

I think I want to press ahead with the endo because I might not get another chance. This way they can have a look inside and figure out if any thing is majorly wrong.

I don't want to mask anything majorly wrong in there by ameliorating my symptoms.

I will attempt the gluten-free diet even if my endo is negative. I'd just rather have a negative endo than nothing so that I know whether my choice will be to try and alleviate symptoms or to prevent major damage.

In Topic: Negative Blood Test But My Fantastic Doctor Has Referred For Biopsy Due To Sy...

14 February 2013 - 10:41 AM

The thing is, I was vegan for three and a half years and I still had the same symptoms. One of the main reasons I started eating meat and dairy again was so that I could keep my weight up. This led me to the conclusion that since I'm not adversely affected by meat, dairy or eggs that it wasn't my diet causing my symptoms.

I hadn't thought about how the pervasiveness of gluten in all but coeliac diets meant that it would be unlikely that there would ever be a time when I was not consuming it. At this point I'm not letting myself get too invested in the idea of having coeliac disease cause it may well be that it's something else, but it's reassuring that my doctor is taking it seriously and I will be undergoing some proper investigation.

I'm pretty lucky I'm in the UK where all this will be free. I looked up the price of just an upper endoscopy without biopsy from a private healthcare provider and the cheapest they were quoting was £1000. If I didn't have the support of my GP then there's no way I would be able to afford to investigate this on my own.

I will update this thread as new developments arise so hopefully this could be a good resource for those in a similar situation - now and in the future.

Also, cheers for the advice guys. If I exhaust all testing and get no answers I will try going gluten free any way and see if it helps.