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notme45

Member Since 15 Feb 2013
Offline Last Active Aug 19 2013 07:31 PM
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Posts I've Made

In Topic: Upcoming Conference

19 August 2013 - 07:26 PM

If you tell the hotel that you have a restricted medical diet then you might be surprised at how willing the hotel is to allow you to put food in their refrigerator.  It also wouldn't surprise me if the hotel actually does have a set of microwaves and min-fridges that they just don't admit to having unless you push a little bit.  Call the hotel and if the first person whom you speak to isn't willing to help then ask for a manager.  

 

Worse case scenario is you ship a cooler to yourself and fill it up with ice from the ice machine.  Microwaves are cheap these days.

 

By the way, the "find me gluten free" app is very helpful for finding places that sell gluten free products and or have gluten free menus.  You can see a web based version of the app if you google "find me gluten free". 


In Topic: Traveling For Business To Seattle/bellevue (Suggestions)--Newly Diagnosed

23 June 2013 - 08:18 PM

Here is my advice:

 

1.  Get the "Find Me gluten-free" app for your smartphone.  If you don't have a smartphone then buy a smart phone.  The app will help you find gluten free restaurants and grocery stores that sell gluten free products.  I will make a big difference in your life when you travel.

 

2.  Plan in advance where you will buy food at and bring food with you.  On my last trip I had a frozen loaf of bread in my luggage (I like Canyon Bakehouse bread) and when I landed I went to a deli and bought lunch meat.  Lunch meat is almost always gluten free. 

 

3.  In general, the nicer the restaurant is the more accomodating they will be. 

 

4.  If you are going to a restaurant, try to call in advance and ask questions. 

 

5.  Your best bet is usually to order a steak with NO seasonings other than salt and pepper and no sauce.  Other good option is roasted chicken.   

 

6.  GoPicnic is a brand of boxed snacks that requires no refrigeration. You can buy these at Target, Amazon, or Sprouts (if you have Sprouts near you).  GoPicnic is good for plane rides and as an emergency meal. 

 

7.  Subscribe to Gluten Free Living

 

8.  Traveling with Celiac Disease is a bit of a pain but is not the end of the world as long as you plan ahead.


In Topic: Celiac Disease.... Do I Really Have It?

27 March 2013 - 08:09 PM

Biopsy is the gold standard, so yes you almost certainly have Celiac disease.

 

My diagnosis happened in a way that is similar to yours. I had an endoscopy because of acid reflux.  The doctor saw signs of Celiac in my intestines and took biopsies. My villi were almost completely flattened, but I never had any symptoms.  Like you I was a silent Celiac and like you I sometimes question the diagnosis because of my lack of symptoms. 

 

I have been gluten free for over two years.  I still have acid reflux.  To my knowledge acid reflux isn't a symptom of Celiac disease.  

 

What we really need is more silent Celiacs like yourself to get diagnosed.  The more of us that there are the more it will be easier to eat in restaurants and socialize with friends without having to explain your diet. 

 

I can understand how dating would be difficult at your age, but there are plenty of vegans who manage to find partners and I'd think it would be harder to date a vegan then it would be to date a Celiac.  

 

 


In Topic: What Happend To The Celiac.com Podcast?

22 February 2013 - 10:20 PM

I'm sorry to hear that the podcast is gone.  I miss it.

 

I have a few thoughts...

 

I wonder if it might have been possible to do some cross promotion with other celiac related media.  For example, a celiac related magazine provides you with free advertisement and then you provide them with free advertisement.  Perhaps the Celiac Disease Foundation might want to make an announcement on the podcast in exchange for recognizing the podcast in their newsletter.  The podcast then grows in popularity and then it is easier to sell advertising to other parties. 

 

I seem to recall that the Celiac Maniac podcast had sponsors.  I think that Nadine Grzeskowiak, (Gluten free nurse) was one of them. 

 

Unfortunately it seems that Celiac related podcasts seem to last for a few years and then go away.

 

  


In Topic: First Kiss

19 February 2013 - 09:37 PM

I'm married now, but when I was single I made too big a deal out of things that I thought would bother potential girlfriends.  Once I was in a relationship I realized that the things that I worried about didn't bother other people as much as it bothered me.

 

Now that we are a couple, my wife has shared some of the insecurities that she had while dating. Her insecurities and the faults that she found with herself were things that REALLY worried her.   She now laughs about these things

 

Try not to worry about what potential mates will think about the gluten thing.  It isn't nearly as big a deal to other people as it is to you. 

 

One of the things that you could tell your potential date is that you shouldn't share a straw if he has eaten gluten and hasn't brushed his teeth.  Perhaps this will be a gentle way of saying to be careful about kissing you on the mouth.

 

I have one more thought and I hope I'm not being out of line, but there are other PG rated places to kiss someone other than the lips.  He can kiss your cheek, neck, and ears.  You might be surprised how nice it is to be kissed in some of these other PG places.