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Member Since 22 Feb 2013
Offline Last Active Apr 20 2014 10:54 PM

Posts I've Made

In Topic: Ectopic Heartbeats And Exercise?

13 September 2013 - 05:43 AM

Good luck with the tests. Hopefully it won't turn out to be anything serious. This may not be connected to your Celiac, but I think you're right that we (docs included) don't yet understand all the ways Celiac can affect other body systems and be linked to seemingly unrelated problems. Maybe the increase in Celiac and diagnoses will help improve our global understanding of it.

In Topic: Vitamin Deficiencies Once On The gluten-free Diet?

13 September 2013 - 03:55 AM

Thanks for the explanation, D. It's true I'm not living in the U.S., but I have U.S. insurance and my doctor, who is an Osteopath, is there. I'll ask her about nutrient testing when I visit at Christmas. She doesn't have a deep knowledge of Celiac, but to her credit she is the one who suspected and tested for Celiac when I thought that was the least likely explanation for my issues, and she has always been very receptive to my requests for bloodwork tests, etc. I can ask her about nutrient testing and if she thinks I need enzymes when I see her next. It's just a shame that won't be for another few months yet.


Well done for taking matters into your own hands, getting the tests, and figuring out the best route of healing for you.

In Topic: Celiac?

13 September 2013 - 01:18 AM

Blonde and blue eyed could make you more disposed to Celiac, only because it's supposed to be most prevalent in northern Europeans, who tend to have a lot of blue-eyed blondes. I happen to fit that description as well. I've also had the same experience as you where I can feel tired and low energy in daily life, but then when I workout, I get a burst of energy and can workout quite hard. I'm wondering if that might not be a hormonal issue (maybe low dopamine or something?). I've just started B12 supplements to see if that will help at all.


Let us know what the doc says!

In Topic: Vitamin Deficiencies Once On The gluten-free Diet?

12 September 2013 - 06:55 AM

Thanks for your responses guys. D, that's really great that your levels have rebounded after initially getting worse and that you are feeling better. It's certainly reassuring as well, if you too had a nutrient dip originally on the diet and then have turned it around. Everyone says healing takes time, and I don't mind being patient, I just want to make sure I'm doing everything I can to make myself better.


Are digestive enzymes like probiotics or do they act differently? I've just bought probiotics for the first time, as well as some vitamin B12 and D supplements, so hopefully those will help. I thought my GP had tested my vitamin levels at my June appointment, but either she didn't, or never sent me the results (I've written her now to request them). She had sent me the results of the blood count tests, which seemed normal, a follow up Celiac antibody panel (all still positive, but lower values I think), and iron tests. Aside from the Celiac panel, the only thing that seemed abnormal there was a very low ferritin level, just within the bottom end of the normal range.


I'm not familiar with the nutrient absorption tests you mention. Are those different from just checking your vitamin levels? Are they tests your doctor will order or do you have to do them through a private company? Also, how did you know what foods and spices you had antibodies to?


W8in4dave, I'm sorry you are having issues as well. Being relatively new on this diet, I guess our bodies are still adjusting. You may be right that the deficiencies have been a long time in the making and maybe it's just a coincidence that the fingernail grooves and other manlnourishment symptoms started soon after my gluten-free diet did. I certainly can't imagine what major vitamins or minerals I'd suddenly be missing just because I cut out tortillas and whole wheat crackers!

In Topic: Questioning Celiac Diagnosis..?

30 August 2013 - 06:10 AM

It's true that there are other things that can cause a particular serological test to appear positive. Can you check what tests they did to see whether you had more than one that was positive and what tests those were exactly? After that, you'd have to research what the other potential causes of that particular test or tests being positive are and see whether they are likely options for you. (In my case for example, Giardia or tropical sprue seemed like strong possibilities that could have explained the positive bloodwork and the biopsy, but the success of the diet in sorting out my symptoms settled the question.)


Did you have an initial period when you went gluten free where your symptoms improved at all? If so and then symptoms, returned, it's possible that you do have Celiac, but have additional intolerances like some people do. As mentioned, it could be lactose, or soy or corn or one of the other grains that could have become more prominent in your diet since going gluten free.


If you really think you have been misdiagnosed, you could try gently reintroducing some gluten (ie. a mini gluten challenge). If you don't get new or worsened issues, then gluten might not be the root of your problems. Having a medium amount of gluten in your diet for a few months would also allow you to have new blood tests and a biopsy. But, if you do have Celiac, this will do your body harm and could cause your symptoms to get worse. Good luck.

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