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Member Since 27 Feb 2013
Offline Last Active Dec 10 2013 10:38 AM

Posts I've Made

In Topic: Adhd And Mood Disorder

04 December 2013 - 10:53 AM

I've had an ADHD diagnosis since I was 7 and I had the same hope that once the brain fog cleared up that I could live without my meds anymore. My celiac symptoms began when I started high school and I'm now a college senior. Unfortunately, I'm going through reevaluation because I'm still struggling in school and inter-personally with ADHD symptoms. That being said, there are a lot of other neurological issues that could be contributing. Our brains use the food we eat as precursors for the neurotransmitters in our brain, so if something is causing issues in that way then a change in diet could help. But that's not guaranteed. There's so much we don't understand about all these processes and every kid is different.

It has really helped me to have an outlet for all this frustration and also to be informed about what is going on and what medication changes are being made, even when I was really young. Medical tests and procedures can be really scary for children especially if they feel like they're not accepted as being who they are even when everyone around them is trying to help. Just from having been on the other end of this situation, I strongly recommend keeping your son in the loop and in the decision making process. It helps treatments work a lot more effectively because they won't be refused as vehemently and lets the child feel like they're also involved and in control of themselves and their lives. 

In Topic: Has Anyone Here Gone gluten-free, Then Done A Challenge For A Biopsy, Resulti...

25 June 2013 - 02:11 PM

I did three weeks gluten free before doing the challenge for another three weeks and got a positive. But I also had violent reactions when I got diagnosed and my GI said he was almost confident calling the endoscopy positive on sight alone because I had such widespread, visual damage. So it really depends. 


The recommended time for an endo is 3 weeks on gluten. My guess (keyword: guess) is that since you've been off for 3 months that should be sufficient, but talk to your doctor and keep doing your own research. Maybe someone here has a more medically based answer. 

In Topic: Ruling Out Other Health Problems

25 June 2013 - 02:07 PM

My psych symptoms never quite came in waves like that, but I barely remember the three weeks where I had to do my gluten challenge for my biopsy. Now that I'm gluten free, my head is a lot clearer and I feel like my ADD has gone away for the most part. 


If you want to get testing done for Celiac, be sure to do it before going gluten free. Just to put that out there. 

In Topic: Gluten Challenge: Anyone Tried Just Flour And Water?

25 June 2013 - 02:04 PM

There is a easy bread recipe you can make, if you're up for it, that is totally egg free. Google "almost no-knead bread." The most basic ones are flour, water, salt, and yeast. 

You could also try to see if there is a vegan bakery near by or anything like that because they would be egg free. But other than that, pastas work really well too. And then there's soy sauce too. Luckily for you, there are so many things with gluten in them that there have to be some that are also egg free. Go find the list of gluten containing ingredients/foods on this site and just highlight the ones that would work. 


Good luck with the challenge!

In Topic: Endoscopy Soon - Hooray!

25 June 2013 - 01:59 PM

I remember the countdown to my endo... gosh those were the longest days ever. I'm glad to hear you had such a positive experience with your doctor. :) 


It really isn't that unpleasant of a test; I don't remember a thing. And then you just get to sleep a lot.


Keep us updated with how recovery goes!

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