I grew up with so much joint pain (and no real cause other than an occasional doctor who would suggest arthritis) that I only recently realized just how often I thought being uncomfortable was normal. Joint pain is the only Celiac symptom I'm positive I had since earliest childhood, since it's the identical joint pain I still get if I have even the slightest crosscontamination. (I was also extremely thin, but I think people over-excuse that in girls.... the thinness may have been caused by celiac disease.)
My mother took me to numerous doctors, none could figure out what was wrong. No swelling either. Healthy x-rays.
The serious gastrointestinal symptoms and everything else came much later in my 20s and during/after having troubled pregnancies.
So if you're wondering whether the joint pain could be a stand-alone symptom from gluten, I'm a witness that it can be.
It's worth it to try and stick to the diet, good luck!
Hi Finally@45. Your symptoms sound so similar to mine. I am certainly feeling hopeful having read your post. I have so many questions for you, if you don't mind.
How long long did it take for your joints to heal after you went gluten free? How long does it take to get over it when you accidentally eat gluten? Did you have aching legs at night as a child? Do you get migraine-type headaches?
Sorry to bug you bet I hope you get time to reply.