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Member Since 06 Mar 2013
Offline Last Active Mar 21 2013 05:29 PM

Topics I've Started

Recently Gluten Free, No Obvious Results

06 March 2013 - 10:55 AM


I am new to the board and am here and researching on behalf of my husband. After much research we determined that we thought it was highly probable that he was gluten intolerant and possibly celiac for many years. His list of symptoms points directly at gluten sensitivities. He felt bad enough that he was willing to start gluten-free as soon as we suspected it. He has been completely gluten-free for a short time, a good week and a half, but long enough that we expected some little sign that we were on the right track! I have researched everything I've put in front of him, love to cook and am comfortable with what I have used so far, with the exception of possible cc of a curry powder I used early on. He has not cheated..he has stuck to whatever I have prepared or researched as safe for him to purchase.


We had hoped the diarrhea would show some signs of slowing down but he has had no relief. He is not passing any solids..and doesn't seem to be slowing down how often either. We thought that perhaps he was getting relief from night sweats as he had two nights without them..but then last night he had night sweats and some raised an itchy rash on ankles. Sunday he had a panic attack..although it didn't seem to last as long as usual...we feel like we are grasping for straws! We just don't seem to be making any headway at all.

He did a celiac test, it came back negative, but he had been gluten-free for a good week, so not sure whether to trust the results.


Any ideas? He has consumed some cheese. Has cut out milk. It seems like with the drastic removal of anything other than the slightest cc..not even sure where that would come from at this point, there should be something noticeable.

Can we be on the wrong track..or is this typical?


Thank you for any advice you can give!

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