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Member Since 11 Mar 2013
Offline Last Active Mar 12 2013 05:49 AM

Topics I've Started

They Are Refusing To Test For This Based On My Ana, What Do I Do?

12 March 2013 - 05:52 AM

They say my ANA is fine so they aren't going to do the test. 


Meanwhile I'm sitting here, looking like death warmed over, having a lot of issues now. If you were to look at me I look like skin and bones. I've been sick for 3 days now, barely been able to get food in me. I need this test done. If I go to the ER at this point they won't run the test cause they'll just tell me to follow up with my GI doc or something, the GI doc I haven't been able to get ahold of for 5 days. I don't think that's going to change. 


How do I convince them to do this test? I did ask if they ran the specific test for it and they said no, cause due to my other tests they are saying I don't have it. 


I guess they could be right but a blood test will be faster at this point than waiting almost a week to get the GI scopes I will not make it a week with how I am. I am tempted to just go off all gluten and forget all of it since none of them are cooperating with me anyway. 


What's the big deal here? Why won't they test me? 

Do I Need To Expect A Shorter Life Span?

11 March 2013 - 09:17 AM

Doctors are like SURE I have this, they are just going to do a biopsy to confirm in 9 days. I show ALL the symptoms and everything. No one told me what any of this meant til I googled it but I am SO BAD at this point (I am severely underweight and all that) that I am going to just put myself on the diet now and see if there's anything that improves before getting the test. I wasn't told this I heard the name tossed around and I decided to look it up. All I know is this matches everything I've been describing about how my stomach is and how I've been feeling. 


I looked up average lifespan for someone with this and it says if it's diagnosed late or if there is too much damage, then I might not live that long. 


I am 28 years old, and I am rather worried that this wasn't caught in time. What if it wasn't? If I start a different diet today and am strict with it, do I need to worry about not living a full life?


RIght now I am 5'9 108 pounds because of complications. I didn't know this was even a thing, I still don't know if this is what I have, what I do know is I started to show signs as a kid and then I went through years where they thought nothing was wrong because I was able to gain a ton of weight. What I do know is that I've ALWAYS had these symptoms they just got insanely worse after I went off of some medication doctors said I didn't need. 


Anyway, can anyone tell me if I need to be worried about dying young here? Cause yeah 28 is young but it sounds like to be diagnosed with this it's WAY too late. 

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