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ruthie_ray

Member Since 12 Mar 2013
Offline Last Active Aug 13 2013 10:59 AM
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Posts I've Made

In Topic: gluten-free Since March - Went From 124Lbs To 140 Lbs...ugh

15 July 2013 - 11:21 AM

I second the Thyroid checking. I have Hashimoto's.....thyroid isues/disease and celiac disease seem to a quite a common pair.

Thank you. 


In Topic: gluten-free Since March - Went From 124Lbs To 140 Lbs...ugh

15 July 2013 - 11:20 AM

Get your thyroid and hormones checked.

I went through a losing weight phase, then a gaining phase...granted, I do have thyroid disease but I do understand the speed at which it happens. I think my gain was from two things: villi started working (to some degree), and my thyroid continued to deteriorate, also further affecting my hormones.

You probably aren't doing anything wrong with your diet. It's probably hormones and/or thyroid.

Thank you.  I will look into that.


In Topic: Anyone With Confirmed Diagnosis But Constipation Not D?

18 June 2013 - 12:08 PM

So a year and a half ago I saw gastro specialist for bad bloating, pains, no appetite and constipation. Barium and ultrasound confirmed there is nothing wrong with my 'mechanics' and I was sent away with movicol.

Six months layer I went back with the bloating and feeling sick. I asked to be tested for Intolerances and he said a gastroenterologist doesn't do that and sent me away with domperidone!?

After researching further I started having colonics and on advise of therapist cut out bread, pasta, noodles etc. tummy got almost better for 4-5months but has slowly gotten worse again.

I do eat gluten, the odd biscuit, slice of pizza at a party etc but not masses.

Due to movicol I now have a good bm nearly every day but have had some pretty bad episodes of bloating, pains and a total loss of appetite in last few weeks. And I love my grub!! :-(

Do you think I should insist on a coeliac test? Or is it really unlikely with my symptoms? Most people have the opposite troubles.....

Any help appreciated!!

Dear KHickson,

I was diagnosed celiac in March 2013.  I have suffered with constipation for 1/2 my life and usually am more backed up than "lose".  Sorry for the details, but the question required this sort of answer.  My answer is yes.  I am slightly less constipated now that I am on a gluten-free diet.  Constipation can be a symptom of celiac, but most celiacs have the opposite problem.  They thought I had other tummy troubles, but never could pinpoint them.  I sought my celiac diagnosis after unexplained excema, arthritis and headaches.  All 3 other issues went away since gluten-free after my March 2013 Celiac diagnosis.  Constipation is better, but not 100% cured.  Water seems to help with that.  Water...Water....Water.  Good like in finding out what is going on.


In Topic: New To This, What Am I Missing ?

17 June 2013 - 06:39 PM

I had a positive blood test for Celiac's  in the late fall of 2012 . Biopsy confirmed Celiac late December. The symptoms that brought me to my GP were as follows: intense pain on my right abdominal  side  , joints ached, moderate headache on left side ,chronic  loose stool, bloating and distenuated stomach, extreme fatigue, insomnia and I truly had  a very difficult time articulating my thoughts or finishing a sentence. One of the most profound changes was my mental health. Normally very sure of my decisions, I could not make one, and procrastinated. I become frustrated with nearly every normal daily activity. Every email needed to be read several times to comprehend, focusing during a conversation was impossible, I did not have the mental energy to execute simple directions to prepare a meal.

 

I started the Gluten Free diet prior to Xmas 2012. My success with this followed a slow learning curve. Eventually, my headache, joint pain , abdominal pain and insomnia were the first symptoms to gradually dissipate. I know I have inadvertently eaten gluten, the above symptoms return, although not with the same intensity.

 

I am 6.5 months into gluten-free however my mental acuity has not returned, and an unexplained underlying anxiety has replaced my normal personality. For the past 6 months,  I have exposed myself to 98-99 % less gluten than prior to my diagnosis. However, I am constantly exhausted, exercise( I run 20-25 miles a week for the past 35 years) use to elevate my mood and sharpen my focus, now it just fatigues me.

 

 

I  learned early on, I cannot eat at a restaurant, no matter the claim of being " Gluten Free ". Nor anyone else's cooking even though they make the same claim. Is it too early in the " healing process " too expect to feel better? I am moving in the right direction regarding the relief of my physical symptoms, however   mentally  I feel very dull and anxious .

 

My 6 mo. blood work number below:

IGA=17

IGG=8

TTG/IGA=48

TTG/IGG=7

Hi.  I suggest that instead of going 98-99 % gluten free that you go 100% gluten free.  I am only 3 + months into this, but have noticed many symptoms go away and the "Mental Fog" go away.  One thing to consider...do you also drink/eat aspartame products.  Prior to my celiac diagosis, I went off of diet soda and that signficantly improved my mental clarity.  I would suggest that if you consume aspartame products.  It actually made a huge difference in my professional life, as while on diet soda, I was only working with 1/2 a brain.  If you are not on aspartame, then try 100% gluten-free, and perhaps go on a raw diet for a few weeks and see if it helps you get out of the funk.  Water, Water Water.  Good luck.


In Topic: How Much "cheating" Is Allowed ?

10 April 2013 - 08:10 AM

I'm new to this forum and newly diagnosed. I have NO digestive symptoms but understand that gluten still has a negative impact on my body - lower bone density, elevated D, etc.

Since those who are very gluten sensitive still eat out and sometimes accidentally ingest gluten, how about people like me ? Does anyone out there intentionally cheat ? How many times per month is it safe enough to get a gluten fix ?

 

 

Hi Tamber,

I've only been diagnosed for about 5 weeks.  I had mild digestive symptoms, almost not enough to consider the agony of removing gluten from my diet.  I am a bread lover.  I've been gluten free for about 5 weeks, accidentially ingesting gluten once about 2 weeks ago.  Having been off of gluten when I ingested it, I noticed a difference within an hour of eating.  My stomach was cramping and bloated, etc.  Although my digestive symptoms were not major, I had a miriad of other minor health issues that improved, such as anemia, excema, migranes, etc.  You may find that although you do not have any major symptoms, you still may not be aware of some minor issues that could be resolved and improve the quality of your life.  It's not a matter of "if" you have major problems if left untreated, but "when".  If you continue to eat gluten, even with only minor or no symptoms and you are a diagnosed Celiac patient, then you will continue to damage your intestines, have decreased nutrient absorbtion and lower your immune system.  You will be at greater risk for cancer, and other autoimmune related complications.  My suggestion would be to learn to live with it the best you can and learn how to eat out without cheating.  My family and I eat out more than 1xweek.  We go to places where I know I can eat something safe.  I read their websites, I call the specific location, or I ask to speak to someone who is knowledgable about the menu.  Once you have 4 or 5 places you are comfortable with, you won't feel so deprived.  For quick places, Chic-fil-a as a dedicated french fryer for gluten free fries, grilled chicken and a salad (no croutons).   Five Guys offers a gluten free burger that they wrap in lettuce and also has a decicated french fryer. I love 5 Guys because for no extra $, they will grill mushrooms, onions, etc. w/your burger and wrap it all in lettuce. My local Wendy's has some Gluten free options too.  Check with each local spot you like for what they have.  My local Mexican Food joint uses gluten free corn tortillas.  I've confirmed with them that their carnitas and beans are also Gluten free.  I get the carnitas meal twice a month on corn tortillas, with beans and cheese.  (I skip the rice, since they said they cannot confirm it is gluten free and have them give me double beans or a side salad instead).  I can go to a steak house and get filet, baked potato and salad (all gluten free), just watch for certain dressings, all croutons and some other extras that could blow it.  If in doubt, I do not eat it.  Think of the items you already eat, like potatoes and corn that are naturally gluten free and get creative with those, rather than just cutting out gluten.  I have gotten crazy with corn tortillas and potatoes, making wraps, stuffed potatoes, etc.  I try not to complicate dinner too.  I made fried chicken with rice flour this week and it was wonderful.  Easy swap and I did not feel deprived.  Good Luck.  You will have to take it seriously and take the plunge without cheating in order to avoid more serious complications in the future. 

I'm new to this forum and newly diagnosed. I have NO digestive symptoms but understand that gluten still has a negative impact on my body - lower bone density, elevated D, etc.

Since those who are very gluten sensitive still eat out and sometimes accidentally ingest gluten, how about people like me ? Does anyone out there intentionally cheat ? How many times per month is it safe enough to get a gluten fix ?