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Nikki2777

Member Since 14 Mar 2013
Offline Last Active Jul 29 2014 07:23 AM
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#907184 An Anniversary Thank You To Everyone Here!

Posted by Nikki2777 on 25 February 2014 - 02:58 PM

I'm just about at the 1st anniversary of my diagnosis and I want to take a minute to thank everyone here for your amazing advice and support.  If I were to look back at my first posts, I'd see a lot of denial, anger, negotiation (Can I have just a little bit of gluten???), but here I am, one year later - through your guidance having found wonderful foods, recipes, gluten-free bakeries, and acceptance of the way things just will be from here on out.  

 

I consider myself extremely lucky that my Celiac was found so early - I'd only been having symptoms for a few years, and it was just starting to get bad. When I read the stories here of missed diagnosis, years of pain and patronizing doctors who tell you 'it's all in your head', I am so sad for those of you who have had to endure this, and I hope that I can offer you some support in return.

 

It's not always easy;  I miss the ability to just pop into a restaurant when i'm on the go and order anything I want, and I don't enjoy going into the 'spiel' with the waiter, and having to evaluate and assess every morsel that goes into my mouth. BUT - I feel so much better, no longer itch all over, no longer live doubled over, no longer have daily headaches, and that is worth it!  As I was explaining to a friend, "How lucky am I that what was wrong with me is treatable, and that I can treat it simply with diet - no daily pills, injections, or chemo."

 

Thanks again, to all of you who have been here before me, and to those who are just getting diagnosed, I promise you -- it does get easier!

 

Nikki


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#903749 This Itchy Skin Has Got To Stop!

Posted by Nikki2777 on 24 January 2014 - 08:09 AM

Inside forearms sounds like eczema to me.  That said, my all over itchiness started to lessen after about 2 - 3 months gluten-free.  It recently came back, which I think may be due to a recent accidental glutening or to the very cold weather we're experiencing.  Also, before my dx, I think hormones played a part - are you perimenopausal?

 

If it focuses on area inside forearms near the visible vein, my guess would be gluten and it will go away soon.  However, if it's more generalized, especially in the crook of your elbow, my bet would be on eczema (another autoimmune disorder that can travel with Celiac), and I would start by NOT showering so much, and don 't use super-hot water.  And apply/re-apply often a cream like Cerave or Vanicream (I think that's the name).  If that doesn't help after a week or so, you may need a derm to check it out and prescribe a short-term steroid cream.

 

I would also get your liver and kidney function tested - in fact, it was this itching that led my dermatologist to recommend my GP run tests for liver and kidney function, and in the course of it my GP added Celiac to the testing panel, based on our conversation.  I credit this all with diagnosing my Celiac before it got really bad because I was only starting to get a variety of problems, all of which seemed, on surface, to be very disconnected.


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#902463 Was Better But Now Sicker Than Ever - Help!

Posted by Nikki2777 on 12 January 2014 - 07:26 PM

Hi Donna,
 
I suggest not eating out for a month to see if that helps.


Sounds more like she shouldn't be eating in!
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#882366 Pret A Manger's New Salads

Posted by Nikki2777 on 01 August 2013 - 12:54 PM

I know they're not everywhere, but here in office-land Manhattan there are many Pret a Mangers.  Last week, the Pret near my office introduced a whole bunch of new salads, several of which they claim to be gluten-free, as well as a gluten-free tag on their shelf cards where appropriate.

 

I'm not a super-sensitive Celiac, but so far I've tried the falafel salad and the prosciutto/quinoa one and both were very tasty.

 

Just when I was yearning for more variety in my lunchtime options.  I'm very pleased!

 

And, if I can add, about 4 months back I was getting coffee there when I saw what looked to be a 'visitor from corporate' checking things out, so I pulled her aside and started haranguing her about gluten-free options and labeling.  I wonder if our conversation had any part in these new choices (probably not, but it's fun to think so!)

 

Just wanted to let people know there are new choices at Pret.

 

 

 

 

 

 


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#876624 Red Apple Lipstick

Posted by Nikki2777 on 25 June 2013 - 06:35 PM

I just bought  my first one, but the color is fairly pale (sand storm or something like that)  Are they sold in any stores where you could try out or at least see the colors?  They're not cheap, and I'd like to get it right next time.


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#873003 Seizures And Celiac? I Need To Get Some Thoughts

Posted by Nikki2777 on 06 June 2013 - 06:52 AM

They have service dogs that can sense when you're about to have a seizure - at least a grand mal, I think.  I met a woman once who had a dog with her and she was allowed to drive with him in the car (back roads) - he would alert her and she'd pull over.


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#870296 What Do You Miss The Most?

Posted by Nikki2777 on 23 May 2013 - 09:26 AM

Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

 

Mitzi - Schar makes a pretty good facsimile - the Deli Style bread.  It's my go to bread right now.

 

For me, I miss a real croissant, and the getting madeleines to dunk in my Starbucks coffee.

 

But mostly I miss the convenience and spontenaety (sp?) of being able to decide 'when i get there' what to have.  Or grab whatever strikes my fancy at the moment.


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#866384 I Do Not Fit In

Posted by Nikki2777 on 02 May 2013 - 10:24 AM

I'll bet with dating you have better luck saying you have some food allergies, so it would be helpful to find out the name of the restaurant beforehand.  Then  you can check out the menus.  I think strangers get less freaked out if they think you have allergies than that you have a 'disease'.  And, in fact, that is what this thing is.

 

Good luck.  I've only been diagnosed 2 months ago, and after feeling gutted (!hah) by the diagnosis and gone into mourning, I've already figured out that it's not so bad.  And better than feeling lousy.


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#863020 I've Decided I Don't Want This...

Posted by Nikki2777 on 11 April 2013 - 10:18 AM

Hah, just realized I had a typo (but you all seem to have gotten what I was saying) ^^ I waver between DISCOURAGING them from eating my gluten-free stuff and thinking it's best to swap in gluten-free options wherever possible.


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#863006 I've Decided I Don't Want This...

Posted by Nikki2777 on 11 April 2013 - 09:46 AM

I've been trying to do this by myself without going to the doctors, buying new foods, not eating what I use to, and it's a pain in the butt. I am a SAHM with 3 kids and am busy and constantly on the go.  Kid's and husband have no food issues and eat everything I want to eat.  It is so hard to have everything staring me in the face.  I love food and love carbs, pasta, pizza, chips, beer, you name it.  

I know how you feel.  I was diagnosed just over a month ago and it's hard when the rest of the family is eating things you want!  I've found that bit by bit, my kids are actually learning to like my gluten-free Pretzels, Cookies etc. (I've asked a lot of questions to find good brands/treats), which means less unsafe food in the house.  I waver between encouraging them to eat my stuff (which is usually more expensive and sometimes they finish it, leaving me nothing!!) and thinking it's best all around if we swap in gluten-free options where possible.  


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