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jjbrigade

Member Since 15 Mar 2013
Offline Last Active Nov 10 2013 05:27 PM
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Posts I've Made

In Topic: I Don't Understand My Blood Test Results Help!

19 April 2013 - 10:29 AM

If that test was low, you would need a different way to test for Celiac.  It looks like you make plenty of the antibodies they were testing you for. 

 

Obviously, your doctor doesn't understand Celiac testing.  That is why I suggested you read and give him some info from a reliable medical source.  He would not consider an internet forum a reliable source.  :blink:

Thank you so much! I've sent an email off to Chicago. I will wait and see what they say. Thanks!!! 


In Topic: I Don't Understand My Blood Test Results Help!

19 April 2013 - 10:02 AM

Your test that is high, just means that you are able to make the antibodies the other tests look for.  A few people cannot make the right antibodies for the test, that is why they do that test.  You would need to be eating gluten to get an accurate biopsy.  Do you have an actual copy that you could fax or scan and email?  It sounds like your doctor is confused.  You could send the test results to Chicago and see what they say.  Then show that to your doctor.  They do require an actual copy of the printout from the lab.

 

http://www.curecelia....org/contact-us

 

 

 

 

http://www.curecelia...onals/screening

 

 

 

"For most people, the serum anti-tissue transglutaminase (tTG-IgA) is the best antibody blood test for screening for celiac disease; however, it is important to also get a total serum IgA. Having this total serum test will help bolster the reliability of the tTG test. The reason for this is that while the tTG test is very reliable, its reliability is dependent on the premise that the person being tested adequately produces IgA. If the individual does not produce sufficient amounts of IgA and is instead IgA deficient, then tTG-IgG should be tested instead."

Ok, I just want to make sure I understand what you are saying. If my Immunoglobulin A result was not high, then the test would have been inconclusive?


In Topic: I Don't Understand My Blood Test Results Help!

19 April 2013 - 09:22 AM

I'm new to this as well, but I do recognize that the first exam, the one that is high is actually your control.  That IgA indicates you have enough antibodies to allow the following tests to be run. That is not indicative of celiac in of itself.

 

The following tests all show you currently in a 'negative' for celiac disease.

 

That is not to say you don't have it of course, especially with you having been glutenfree leading up to your blood tests.

 

There are others more familiar with reading the results, so please chime in :)

I wasn't gluten-free leading up to my test. I was tested 3 months ago and my doctor says that the high Immunoglobulin A test result indicates a gluten intolerance. But a gluten-free friend of mine said that if one of the tests comes back high that I have Celiac. I'm totally confused. So even though one of the tests came back high, I don't have Celiac? 


In Topic: Gluten-Free Lite Beer

19 April 2013 - 09:20 AM

You say you're newly diagnosed... Do you have any problems drinking alcohol? I know it's subjective but I had a few ciders a while back (and an omission) and felt pretty crappy afterwards. I plan on holding off for a few months but was just wondering how we as a collective group monitor and know when to come back to a certain substance?

 

Thanks!

I have tried ciders and I am fine with those. I've had omission, and I don't remember any issues with that either, other than the fact that I didn't like the taste. Now when I drink I just go for mixed drinks. Most rum is gluten-free and I haven't had any issues with that.


In Topic: So Fed Up

19 April 2013 - 07:17 AM

I have to say a little something about this. I was recently diagnosed and now I have been even sicker then before when cross contamination happen but my mom keeps telling me it's in my head. She thinks its strange that I ate these foods for years and wasnt so sick and now I am. She said she doesn't think this eating glutin free is any safer for me. So Last night she called and I was in bed with a migrane and a bucket throwing up so she asked me why and I told her I think I ate cross contaminated food. She then laughed and said no you probly have bug. So I feel your pain with this and it makes you feel like you are possing problem with others. Horrable

I am having the same problem. I can't figure out if I'm just eating something wrong, or if it's due to cross contamination. It's very difficult, with all the boxed and processed foods these days, to know what to look for on the label. I had a friend tell me that I should stick to organic food, and if it has more than 5 ingredients in it, to steer clear of it. This has been a difficult change for me, seeing as I don't really cook. I get sick randomly, and I try and think about what I had to eat that day. But sometimes I react and sometimes I don't. Which is why I'm thinking cross contamination. I had ONE piece of licorice, even tho I know I shouldn't eat it. That was the worst night of my life. I didn't realize that migraines/headaches were a reaction to gluten. That makes so much more sense now!