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Member Since 17 Mar 2013
Offline Last Active Nov 24 2013 02:00 PM

Topics I've Started

Ridiculous Conversations

03 October 2013 - 03:22 AM

This morning I was thinking... I should write a book about all the ridiculous conversations I've had with people about gluten free diet, etc. I'll bet there are lots of stories out there... let's share. Laughing is a good way to cope, right?


So I told my coworker (who is also my aunt) that gluten-free diet cleared up my daily migraines (she has migraines often as well). Her response: "well I know that isn't the problem because Aunt F has celiac and she still gets migraines even though she's gluten-free". Sigh. Ok...


Here's another one:

LL: did I hear you are wheat free?

Me: yes. Well, I'm gluten-free, which is wheat free.

LL: Well, not all wheat has gluten.

Me: it does...

LL: No, there's this unaltered strain of wheat that some amish farmer in NY has.

Me: Ok, well I don't have access to that, so I'm wheat free. 

LL: *goes on to discuss just starting wheat free and seeing a big difference, and using coconut wheat (?!?) as a substitution*

Me: Well that's good. So wheat is definitely a problem for you, huh?
LL: For sure. I ate pizza all weekend and I'm paying the price now!

Mc D's gluten-free Burgers & Wendy's Frosty Cone

03 October 2013 - 03:10 AM

I'm sorry if anyone has already posted about these things. I did a quick search and found nothing.


I see that the McDonald's near me now offers gluten-free burgers. Has anyone tried this? Are they on gluten-free buns? I don't think I'll ever have the nerve to try them, but I wondered if anyone has and whether or not they had reactions.


I also see that Wendy's offers frosty CONES now. And now I feel like I can't have that anymore because the machine might touch the cones and get crumbs on it, and then I could get poisoned. Wendy's frosties were the ONE thing I felt safe getting, and I'm having a hard time coping with this. Has anyone had a frosty at a Wendy's where frosty cones are served? Any reactions?


Please & thanks.

So Confused! Milk, Dairy, Casein?

02 June 2013 - 03:42 PM

I definitely have some kind of problem with dairy... Usually after I eat cheese (pizza is the worst), I get a pretty bad stomachache along with some cramping, bloating, and constipation. Some products with milk in them are fine and don't cause problems (like chips with cheese flavor). I just never know until I try it. After a particularily bad experience with pizza, I decided to trial dairy free for a few weeks and see if I felt better. Well, this is day 6, and things are going ok, I guess. I haven't seen any of the symptoms that I see from dairy. But... gluten free + dairy free is no fun at all! I don't really understand the differences between all the milk/dairy/casein problems that people have... Also, since it's likely that I have celiac disease, I hear that my body is maybe just still healing (gluten-free for 3 months only) & having trouble with dairy for now.


I take a probiotic daily, and I recently found out that they make a "lactose defense" formula. I'm wondering if this will work for me. But not really knowing exactly what my problem is, and if my body can't handle dairy because it's still healing, I don't know if it's a good idea. I just want to be able to eat food and not blow up like a balloon! Dairy free is for sure a ton more difficult than gluten free for me. So if there's a way to still be able to have cheese & ice cream, I want to know!



Temper Tantrum/ Pity Party!

22 May 2013 - 04:37 PM

So a week or two I had some pickles from a jar clearly marked "gluten free". Tonight I had some pickles (Milwaukee midgit dill pickles) and didn't even think about it. Exactly 1.5 hours later, I got all the symptoms. I thought I was crazy, but I researched it, and found out that distilled vinegar is generally considered gluten free, but some have a reaction to it... Seriously?!? I am beyond frustrated. This. Sucks. I just want to cry.

Sell Me On Testing!

27 April 2013 - 05:18 AM

Hi, all. I've been gluten-free for 8 weeks now, and I'm 1000% positive that gluten is a problem for me. In those 8 weeks, I've been glutened a few times, and every single time, it's the same: exactly 1.5 hours later, I get a horrible migraine (which I had nonstop before giving up gluten); my belly gets all bloated and grumbly, and I feel like I've been punched in the stomach. 


I have a doctor appointment on Tuesday (as a migraine follow-up/ concern about med side effects). When I initailly told her that a gluten-free diet made my migraines go away, she said, "huh". So I have a feeling she doesn't really buy it. But... as much as I shudder to consider doing a gluten challenge, how important is it to do testing for celiac? I know that gluten is a problem, so I won't eat it regardless, but if I do have celiac, why do I need to know that? If a gluten-free diet is the only treatment, I'm doing that already, yes?


I'm sorry. I don't mean to sound dense... but I'm having a hard time deciding if this is important. What changed for you once you got a diagnosos (besides going gluten-free?)