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SeekingSarah

Member Since 19 Mar 2013
Offline Last Active Jun 19 2013 08:32 PM
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Posts I've Made

In Topic: Opt For Genetic Test?

12 June 2013 - 08:03 PM


 

Good luck, make sure that SED rate gets followed up in case there is something else going on.

 

I see my FL PCP in a couple weeks, she is more receptive to my concerns since she has treated me for 9 years, she is on top of the SED rate, after the 84 one in May I found out from another doc that I had a common bac infection occurring so that might explain it...but was it occurring in April with the 65 SED rate? Who knows, But PCP will recheck it for sure! 


In Topic: Opt For Genetic Test?

11 June 2013 - 12:29 PM

Well I'm hoping if I can get some sort of DX for myself...it will encourage my sister and my mom to steer him in the right direction for his issue. I have little say, but for a kid who rarely would ask for something for him to bring up these things to my mom show they must be bothering him. 


In Topic: Opt For Genetic Test?

11 June 2013 - 07:08 AM

When I first read about Celiac I told my mom I wondered if my nephew's mild behavior issues growing up were due to it?

 

Well just spent weekend with him, he is 18, noticed right off he has a sore spot on his LIP exact spot where I get one. He also has rash on his chin like I get. Then during lunch he was not eating and told my Mom that food makes him sick to his stomach!!!!!!!! He even asked her about the place on his lip, if she thought it was an infection (she's a nurse) because he said he's "popped" it...like he would a pimple...3 times and it's still not gone away.

 

I'm definitely going to push to get the genetic text now! My mom thought he needs some OTC meds...or to see a doctor, I know the docs around here would just give him some prescriptions and send him on his way. 


In Topic: Opt For Genetic Test?

28 May 2013 - 06:29 PM

Low B12 can indeed come from gastric surgery.....

Yes, I know that...as I stated the IBS, Low Vit D, Low B-12 and the anemia can come be after effects of gastric bypass but they are all also related to Celiac or Gluten, intolerance as is the skin rash, acid reflux, missed periods, night sweats, weight gain...etc.etc.etc.etc.etc. Thus the reason I'd like some real answers instead of just blaming the surgery...before I had surgery everything was just blamed on being obese. 


In Topic: Opt For Genetic Test?

27 May 2013 - 08:17 PM

Just got my retested SED rate via the patient portal...it's now 86. Something's not right....awaiting to see what PCP will recommend tested this week. The local doctor who ran the original SED rate that was 65 has NEVER said a thing about it....grrrr hate some doctors.