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Member Since 19 Mar 2013
Offline Last Active Jun 19 2013 08:32 PM

Topics I've Started

Skin Issue...either Hard Bumps, Or Blisters.

04 June 2013 - 02:57 PM

The "rash" or skin issue I have are either yellow blisters on my face, or hard painful bumps that are not pimplelike (no core or head). Just had a few tiny sores appear on my chest, again, I have visible scars from previous outbreaks. Face, scalp, neck/hairline, back, chest, scars on arms from previous sores, bump on roof of mouth, and blister cluster in arch of foot. I've made an appt for a derm my PCP in FL recommends. Yes I now live in Ohio but seem to have to travel to FL to get decent care...I lived in FL for 9 years. 

Why Are Gi Symptoms Worse In The Morning?

30 May 2013 - 08:23 PM

Any thought to why GI issues are worse in the morning? I spend at least and hour in the bathroom, just cannot empty bowels, not constipated per say, just cannot move everything out., stomach continues to cramp the rest of the morning, might actually need to have another BM or it's just cramping...maybe mucus, but I feel completely wiped out many times I just crawl back into bed and sleep if at all possible, I have even called off work a few times because it was that bad and I could not function. I find that if I survive until afternoon the issues pretty much go away or at least the painful cramping/spasms. I often say if I could just find a way to make these symptoms occur before bed instead of before work I could manage somewhat better...although ideally I want to get resolve them all together.

Opt For Genetic Test?

26 May 2013 - 07:45 PM

My Celiac panel was neg, very high Total Serum Iga? High SED rate 65. PCP who has treated me for the past 9 years is back from maternity leave and is said Celiac wouldn't account for that high of SED rate, she ordered it retested (from FL, I am now in Ohio) waiting to see if it's still high. Saw local dermatologist about skin rash, she refused to do a biopsy said she has two other patients with DH and my rash is not presenting in those areas. YET, her visually made DX was Eczema??? The GI I saw here said he'd be willing to do an endo, but that was before my blood results came back neg so not sure his opinion now....wondering better option might be to have the genetic blood test run, then just go gluten-free and see if symptoms get better? I really want some REAL confirmation either way. 

Dermatologist Wouldn't Due A Biopsy. :-@ (X Post...sorry Didn't Know There Was...

16 May 2013 - 02:11 PM

NP said "well if the blood test were negative? then why test?" 


Hmmmmm how about you should biopsy a persistent skin rash in general before you go prescribing medication??? So then the doctor comes in and says she has two other patients with DH and my rash is not the areas that DH presents. Really...currently on face, neck, back, scalp...scars on arms and chest from past issues??? Not many other areas left???


Scolding me for scratching...that's why they aren't healing...use this medication for 14 days so the areas can heal. Ok...so I ask...this will heal the areas, but will it stop new spots from developing? "If new spots occur put medication on them and DON'T SCRATCH". Ok so if medication is so strong I can only use it for 14 days...what happens after that? 


It's like I'm asking for a full body scan or something radical and expensive???? Skin biopsy...in office procedure.


So do I try to find another doctor...I mean how do you know until you get there? I don't want to waste more time and $ going to doctors who will refuse to actually DX something...I say that again because why not biopsy to see WHAT it is...of course by her ignorance on the matter I figured she'd have not done the biopsy correctly anyway. 


OR do I just cut out gluten and see what happens? I haven't gone back to GI yet because I was going to see what the skin biopsy results were. He was certain it was "just IBS" but at least he ordered the Celiac panel which was negative. 


PCP in FL (I'm back in OH), is concerned with SED rate of 65, normal is under 20...she wants to know what my doctors here are saying is the reason...um yeah the doctors HERE suck and have not said anything about...she would like it checked again got see if it's still high. I told her I'd try...but doctors around here don't seem to like educated patients.

Stage 2 Kidney Disease? Just Noticed Lab Result.

14 May 2013 - 02:03 PM

My PCP in FL (I moved back to Ohio last year) is back from maternity leave so I emailed her an update that I'm pursuing possible Celiac or Gluten intolerance as cause of some of my medical issues. I told her the Celiac panel was negative but I have appt with dermatologist this week. I mentioned my SED rate was 65, and she replied back that was very high (I knew this), said Celiac would not cause it to be THAT high and wanted to know what reason the doctors here gave me for it being so high....and asked me to send her the labs. I told her I have not gone back to the GI who ran those tests, waiting until after the Derm appointment in getting the labs to fax to her I noticed my GFR was 81 and under it the range stated it was Stage 2. So I look it up and it's Glomerular Filtration Rate...related to creatine in blood...kidney function. 


Is that common with Celiac/Gluten intolerance? Or do I have something else going on?

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