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Member Since 20 Mar 2013
Offline Last Active Jun 10 2013 07:25 PM

#861790 18M Old - With Genetics Against Her

Posted by on 03 April 2013 - 07:52 PM

Oh April, what an ordeal. Doctors are not perfect & celiac diagnosis is for some reason a mystery. In Aug, my 22 month old had been sick for 2 months, in & out of the hospital...gas, bloating, vomitting, diarrhea, constipation, dehydration & was failing to thrive (out of nowhere). Peds GI specialist said did VIRUS not celiac, went dairy & soy free, said lots of calories and carbs. He kept getting sicker. I found this sight (wanted to try anything) took him off gluten for 1 day... next day his improvement was DRAMATIC, got up to play for first time in 2 wks & had his first normal bowel movement in 2

months. GI Doc saw us within days & confirmed celiac...THEY MISSED THE DIAGNOSIS! Apparently little ones rebound very quickly. Always follow up with a doc, but TRY gluten-free for a day or two...one day wont ruin their tests...and see if you notice a change. Moms instincts count for something
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#861037 New Here, Feeling Miserable

Posted by on 28 March 2013 - 09:01 PM

Sounds like you've figured out your own problem, like a huge number of people with gluten issues. Your reactions scream gluten intolerance or likely celiac. It is no secret that the medical community is far behind in diagnosis of celiac. It can be important to know if you are gluten-intolerant or have celiac disease...however you need to have gluten in your system to test accurately for celiac, so call your doctor ASAP, tell her your find & get blood test immediately. Dont worry about what your doctor might think...celiac is one of those diseases that requires you to be your own advocate. I discovered my baby's celiac after 2 months of misdiagnosis by gi docs thanks to this website & it saved his life!
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