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RobinL

Member Since 21 Mar 2013
Offline Last Active Mar 24 2013 08:07 PM
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Posts I've Made

In Topic: Test Result Confusion

23 March 2013 - 09:48 AM

My doctor told me that you need to be on gluten at least once a day for 6 weeks for the blood test to work. I did that, and had similarly inconclusive results... and the doctor said even on gluten for 6 weeks, it could be not enough time to see a reaction (this is just for a blood panel, not an endoscopy).

 

So in my experience, you might not have been on gluten enough for the blood tests to work. I have read some forums that suggest 3 months. And for the endoscopy, it depends how many samples they take, from how many different places etc.

 

 

 


In Topic: Can Celiac Symptoms Come And Go

23 March 2013 - 09:41 AM

In 1964, the classic symptom of celiac disease was 'failure to thrive"... meaning you probably lost a lot of weight as a child/had stunted growth. So on the one hand, a blood test or endoscopy was probably not done. On the other hand, if your celiac disease diagnosis was correct, you would absolutely still have it today. It cannot come and go--it is a lifelong illness that must be treated with a gluten-free diet. You're symptoms can come and go (and become less severe), but that wouldn't change the underlying illness.

 

I would get a blood panel ASAP. You should have results within a week. But DO NOT give up gluten before your blood panel--I gave up gluten for one month 4 months before my blood results, and even then, my doctor said they invalidated the results. So for peace of mind, keep eating gluten, at least once a day. But get a blood panel as soon as possible.

 


In Topic: Inconclusive Blood Tests... Now On To Gi, What Is Waittime?

21 March 2013 - 10:31 AM

A week for me, but i've heard a month or so as well.

Thanks!