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Member Since 21 Mar 2013
Offline Last Active Mar 30 2014 05:20 PM

Topics I've Started

Not Sure What To Do About My Kids

02 June 2013 - 07:35 PM

My three year old son has had digestive issues since he started solid food at 6 months.  He was horribly constipated, sometimes for more than a week or two (before he was prescribed miralax).  He cried every time he went to the bathroom and he would push and push until a huge ball of poop would come out (size of a softball at least) from his little body.  Then he would shake and cry and recover from the pain of it.  This was a daily occurrence.  He also had iron deficiency anemia and he is missing enamel on his teeth which is causing a bunch of dental issues.  He would also throw these tantrums that had no rhyme or reason, and it seemed like he wanted to stop and couldn't.  Our doctor was very unhelpful, so we just started researching things on our own.  We started a gluten-free diet about 6 months ago.  From about 2 days in, we could see a huge difference!  His constipation went away and we were able to wean him from the daily adult dose of miralax that he had been on since he was 6 months old.  He is no longer anemic.  His tantrums stopped.  We are so thankful!  However, I know this means he can't get an accurate diagnosis.  I do not think I can put him through a gluten challenge.  He got glutened from some cross contamination recently.  He was sick for 6 days.  All he did all day was cry and then fall asleep.  He was horribly constipated for the first three days, and then had terrible diarrhea for the next three.  It was awful.  I actually think a gluten challenge would kill him!  I can't imagine him actually eating a piece of bread or something! My one year old had all the same symptoms when she first ate gluten, so she is also gluten free.  She has no symptoms at all since we started the diet.  I guess I need to hear that it is okay to have them undiagnosed.  Or alternatives to a gluten challenge.  We have switched peds a few times to try to find someone who will help us, but they all have little to no experience with it.  Please help me in any way you can.  We are happy gluten-free, but I don't want to overlook something by not having them diagnosed and monitored.  Thank you for reading this loooong post! :)

Can Testing Wait?

22 March 2013 - 07:36 PM

I have a 3 year old son who has had severe GI issues, iron deficiency anemia, missing tooth enamel, and unexplained outbursts since he was 6 months old and started solid food.  I could not get my pediatrician to understand how bad it was.  I even took video of my son screaming in pain as he went to the bathroom.  And this was a daily thing!  In my heart I knew it had to do with food.  So the first thing I did was eliminate dairy.  It helped for a little while, but then things went back to the same as before.  Still no help from pediatrican.  He even refused to give me a referrral to a GI doc!  (We are switching pediatricians, btw).  Anyway, I was desperate to help my son, so we put him on a strict gluten free diet about 4 months ago.  The change in him is amazing!  No more GI issues.  No more anemia.  No more tantrums.  He is more outgoing and happy.  He could finally potty train.  And we were able to get him off the laxatives the doctor had prescribed for the past 2 1/2 years.  Here is my dilemma: I have backed myself into a corner when it comes to testing!  I know he has to be eating gluten in order to get an accurate diagnosis.  I am reluctant to give him gluten because when he has had it by accident in the past few months, he gets SO sick.  I don't think I could do that to him.  So, can the testing wait until he is older and can handle a gluten challenge better?  Should I bite the bullet and do it now?  I also suspect my 11 month old daughter has similar issues as my son. She does not eat gluten either because it makes her very sick and constipated. Any opinions and experience would be great!  Thank you!

Calling It Celiac?

21 March 2013 - 07:26 PM

Hi Everyone!  This is my first post and it is regarding my 3 year old son.  From the time my son started solid food (6 months old) he had GI issues.  He was severely constipated.  The first time it happened he did not poop for 16 days!  Our doctor said it was fine, but my baby was in so much pain. At that point our pediatrician prescribed Miralax to be taken daily.  We started that, and it helped some, but he still needed suppositories at least once a week.  Our ped had to increase the dose more and more as our baby kept adjusting to it.  In my heart I believed that there was something wrong, like a food allergy.  Along with his stomach pain and constipation, his iron was extremely low.  He had cupped shaped big toenails.  We also found out that his teeth were missing enamel.  And on top of that were the unexplained tantrums.  So, I finally decided to eliminate gluten.  We started a completely gluten free diet 4 months ago and he is a completely different child!  We were able to take him off his miralax for the first time in 2 1/2 years.  He was finally able to finish potty training because he poops daily now.  His mood is amazing.  Even other people have asked us what changed.  His iron test the other day was in the normal range.  Also, when he has gluten he is SO sick.  Even the tiniest speck of flour or using play doh has an effect on him.  It lasts for about three days.  He is irritable and constipated.  He complains that he feels sick and he cries more.  I feel like this is Celiac disease.  I want to call it that because I feel like people take it more seriously and I need them to take it seriously.  So, what is the protocol in the Celiac world?  Can I give him that diagnosis on my own?  I do not want to go through all the testing at his age.  And I also don't want to put him back on gluten in order to get the testing done.  He is finally the sweet loving boy I knew he was!  Thanks for any insight and opinions!  Sorry so long!