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Member Since 24 Mar 2013
Offline Last Active Mar 26 2013 01:47 PM

Posts I've Made

In Topic: 8 Year Old Daughter, Suspected Celiac?

26 March 2013 - 01:48 PM

You know, my son hasn't been growing that well in the last year and a half.... I just thought his hormones were waiting to kick in... Now I wonder about him too.

In Topic: 8 Year Old Daughter, Suspected Celiac?

26 March 2013 - 01:47 PM

I had been staying on top of the fever thing the whole time... no worries there. Round the clock meds, and cool compresses on her forehead and neck.. and lots of cuddles and backrubs! I am SO exhausted!!! Her fever finally broke and she is back to normal today. She wanted to eat, so she had chicken noodle soup and a few other bland things, and she seems pretty good, except tired. 

I am still wondering about the test... does anyone have any input on that. 154 in a range of 184-415?   And the doctor insisting that was an adult range, but everything I read stated adults have a lower level of alk phos and therefore lower values. I am going to just keep an eye on her for now, and if she has any more vomiting episodes, I am going to try to get her seen by someone else. I don't necessarily want to go straight to the ped. gastro because I think some of the preliminary testing could be done here vs. having me drive all that way. 

In Topic: 8 Year Old Daughter, Suspected Celiac?

25 March 2013 - 09:25 PM

I cross referenced, and adult ranges appear to be around 40-120 whereas children's can vary, but are anywhere from 130-500. Since this test states that the range is 184-415 and her age is clearly marked on the paper, I feel that I need to probe into this further. She clearly has stomach issues, and I don't feel at all satisfied being told to just "wait and see what else happens" when she has already suffered through 8-9 months of daily nausea with 4-5 vomiting episodes.
She is ill right now... has had a fever ranging from 100-105 going on 5 days now/has lost weight/has absolutely no appetite/her stomach hurts!  and the doctor didn't seem that concerned about that either, so I'm taking her to urgent care tomorrow. Time to find a new ped practice, apparently.

In Topic: 8 Year Old Daughter, Suspected Celiac?

25 March 2013 - 02:46 PM

So, the doctor says that the alkaline phosphatase test was normal, even though it says it isn't... that the values were based on an adult. I'm not sure I buy that. I'm going to research some more.
I am sure she has a viral infection. One of my other kids had something similar to this about 10 years ago with a high fever that lasted for 5 days and no other symptoms, but I guess she just had me worried because of the other stuff that's been going on. 

They ran this test on my daughter, who is 8 years old: ALP SerPl-cCnc
The range was 184-415
her result was 154
 I thought adult ranges were lower, so I am a bit confused and still concerned.

In Topic: 8 Year Old Daughter, Suspected Celiac?

25 March 2013 - 11:27 AM

I am getting a little worried about her... I am not sure if this is related or not, but she developed a fever Friday, which she still has today (Monday) although it is now low-grade. Over the weekend, it spiked as high as 105, but I was able to bring it slowly back down to 101-102. She has zero appetite (doesn't even want anything chocolate, which is odd) and has lost 4lbs, which is a lot considering she only weighed 54 to begin with. 
The doctor is supposed to be calling me back sometime today, but in the meantime, I feel like I'm going to go nuts. 
How does everyone cope with the stress of all of this? I can handle it when there is something wrong with me, but I almost feel physically ill thinking that my child is sick.