Posted by Brandiwine
on 12 November 2014 - 10:11 AM
Every time I get glutened I google the heck out of the internet, trying to figure out how and why does this toxic process work and is there some kind of herb or anything that will help.
So, this last time I got glutened, I stumbled on something that was actually helpful.
Pelargonium sidoides, also known as umckaloabo. A herbal remedy you can buy for cough and cold. This herb blocks the production of interleukin 15 which is associated with celiac disease. Here is the article I read that led me on this path of discovery. (sorry I know I sound very dramatic. I'm just so dang psyched!)
Okay, so I spent all day Friday running around town trying to find the stuff, because I was desperate. I cannot handle the symptoms of a glutening... the nausea, bloating, and pure anger at the world. I found Umcka by Nature's way. I took some. Nothing much happened at first, but by the next morning, I felt normal. The week after getting glutened, I always bloat up like I'm 5 months pregnant for a solid 6.5 days. Right now it's Tuesday and usually by this point I would be feeling the pits, hating my stomach, sleeping badly, desperately waiting for a week to be up so that I could get back to normal. But, I am normal. My stomach feels fab. I'm giddy with the potentiality of this herb. Could I maybe eat at a restaurant now and then without all the usual anxiety? That would be a freakin miracle.
I can't find anybody else on the internet talking about taking this stuff for a celiac flare. I took the recommended dose on the package, fyi.
I feel you! I haven't seen any of my friends since this started. Actually as weird as it sounds I've gotten closer to my ex husband, we have to talk about Celiac and GFD because of our oldest son. I'm sure he gets sick of hearing about it too. :-/ I too fight depression, and I feel it's because this has taken over my life. Don't get me wrong I'm thankful to have a name and treatment for it. I'm thankful for the improvements my son and I have made. But I feel like I eat, sleep, and breath GFD and Celiac! If I try to distract myself with tasks and jobs, I start having nightmares of eating gluten! Weird huh?!
Have you looked into support groups near you? I would think that should help a lot to make new friends that share this experience.
So sorry Hun, this always hurts worse when it's a " friend". Maybe when you both have a bit of time to clear your mind from raw emotion you can talk and maybe she will be more willing to listen. Maybe reschedule some where you can eat. She may have been upset because she felt robbed of a personal victory, she could have been excited to be able to take you somewhere new that was safe for you and failed. Feeling a little blindsided she probably didn't express herself well. She obviously doesn't understand very much about your needs, hopefully she will be open to learning more. I know it was terrible but try to see her side and hopefully she will try to see yours. Maybe if you let her know that you see her effort and appreciate it, but you are very sensitive.
You probably know how to better deal with your friend than I do just, trying to give an outsiders prospective.
So proud of everyone who replied to these
We are Celiacs we are not a problem to be fixed. Finding that gluten was why I was so sick for so long has saved my life! It's saved my son from a whole list of sickly symptoms. We all want the best for our children, by getting this vaccine would be the same as saying something is wrong with him. I don't want him to have a desire to be like everyone else, I want him to be proud if who he is! Finding this has been a blessing to me and my family, I've gotten my mother (who has MS) to see the connection and she has talked to other family members who we suspect to have it all her immediate family who are considering testing. We are certain my uncle ( her brother) died from this. We hate we couldn't have found it sooner, but relieved to put a name on what has been poisioning us. I feel they should put the effort they put into conjuring this vaccine into Celiac awareness so we can save others not change them.
You all had GREAT things to say! I am proud to be a part of this board!!!! You are all some smart (gluten-free) cookies!!!
You can contact corporate, but I'm not sure it will do any good. It is just my opinion, but trying to force the issue with a restaurant that clearly has no interest in providing safe gluten free meals won't help get safe gluten free meals. And no one reads employee handbooks, training at places like these is a joke (in relation to this sort of thing) and unless (or until) they make it a serious focus and selling point they will not take the time needed to appropriately cover the subject.
I don't agree, I feel they do have an interest in providing safe meals or they wouldn't have had a gluten-free menu at all. They compt his mashed potatoes to replace the fries they were very understand and made a great effort I could tell that they just weren't very educated about it. Emailing corporate may or may not do any thing but I feel if I sat down with the manager I dealt with last night she may try to incorporate changes. They didn't treat us rudely about it at all.... We don't even have a Red Robin around here.
I wouldn't run to the dr just yet, there's a lot of things at play here all which would cause some effects by themselves.I think you should just be careful and take care of yourself if things don't improve in a week or two then make a dr appt. long trips are exgausting, any pain and definitely a broken bone add stress and discomfort, PMS can make you feel lousy and periods are worse, plus you glutened yourself that effects me for a at least a week.
What is it about shows making Celiacs out to be weaklings?! She saying a Celiac can't put away a steak?! ( not this Celiac cause I'm Vegan which she also makes a comment about in one if her videos where she says we should stay home and eat our pre-prepared meals) she acts like a man with Celiac is cutting his food with pinkies up!!! Unbelievable at the ignorance of this women! At one point they say she wants a "caveman" that's right at her level of intelligence!!
I'm certain my mother and brother have Celiac I believe my Aunt (mothers side) has it as well as their brother that passed away two years ago in his 40s. My mother is diagnosed with MS. My brother has sick migraines and nose bleeds and gets D. I wish I could get them to see what they are doing to themselves. They won't listen to me because in my search to get better and before I found Celiac I went vegan which they find rediculous. Because of the arguments we've had about food they won't listen to me. The only other individual in my life gluten-free is my son. My youngest shows no signs and is thriving without the GFD so it's just me and my oldest son. He is 7 so it's more like more responsibly, not so much like having an adult friend but I do enjoy having someone to share snackes and dinner with
That reminds me of our last trip to Albertson's. They carry a brand of sandwich meat and cheese that is gluten free in the deli. The girl that generally waits on us wasn't there last Wed. She is as good as gold because her Mother has celiac. A different guy was behind the counter so I made sure to tell him I had to be careful. He had just waited on another lady who bought another brand, not gluten free. I turned for a moment to look at something and when I looked back he was using the same slicer, there was another slicer that had been cleaned beside him. So I did say, excuse me, did you clean that slicer and did you change gloves? The look he gave me made me feel bad so I said, I'm sorry but if I eat that it'll make me terribly sick. He got an attitide and slung the meat in the trash. At this point I said, I'm sorry I've changed my mind, I better just pass and we decided to just leave. Another lady walked up to me on the way out and said, he had emptied trash before the previous customer and didn't change gloves before cutting her meat. I wanted to know how she knew all this and she said she'd been waiting to get some ham and cheese but changed her mind. No, I didn't tell the manager. I should have but I just couldn't stand knowing I might have caused him to lose his job, now I feel guilty that he might make someone sick. I get so tired of people making me feel guilty and yes embarrassing me. Some people just don't get it. The last time I got sick from cross contamination it took me 3 weeks to start to recover!
I would have felt the same way, but it doesn't sound like you were rude and you did explain yourself saying it would make you sick. It's hard knowing you may cause some one else grief by complaining, but he didn't seem to mind causing you to be ill either. It is part of his job to serve you politely. He won't learn otherwise and you shouldn't have to pass on your food, for us safe places are like gold! It would be a shame for you to have to pass every time you see him working the slicers :-/
Do you have a freezer at work? You could precook and freeze meals and pull them out and put the in the frig the afternoon before. Pre-make gluten-free pasta salad. And I know if it was me I would get an electric hot eye to heat my food. Microwaves are not good for you at all. I bought two of the same plant, watered one with tap water one with microwaved water (room temp) and it took less than three weeks for the microwaved plant to die :-/
I asked this when I first joined the forum because it was a little confusing to me and got these answers. I have done no research myself about yeast but I now know since a few days ago that I can't have it, it makes me sick and feel as if I've been glutened. Not saying it has gluten, most of us have other allergies besides gluten, yeast is one of mine apparently.