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jmryan83

Member Since 27 Mar 2013
Offline Last Active May 12 2013 11:01 AM
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Posts I've Made

In Topic: Quaker Rice Cakes

30 April 2013 - 08:50 PM

Fellow celiacs :) has anyone experienced any problems with the plain Quaker rice cakes?

 

Nope no problems here. I LOVE the chocolate crunch flavor rice cakes best though.


In Topic: I Do Not Fit In

28 April 2013 - 08:11 AM

Hi! welcome! I'm assuming you are eating gluten free? How long have you been diagnosed? What is an air popper? Have you thought about gluten-free cat food for you cat?

 

^ This. And what is an air popper?

 

 

Sorry I am new at the whole online chatting thing.

so I found out after 22 years of life that I was born with celiac,

and a sever grain intolerance, I am getting better but I have only

ever dated one person in my life and it lasted a month.

I can not be around air poppers and am un able to eat meat,

I also have problems with my mood after eating.

 Is there any one out there that can give me something

any thing besides ''enjoy your cat''  or ''learn  to liv with it''

 Thank you... :)

 

Celicat. Living with people who don't understand your disease or are unsympathetic is difficult. It's hard enough just wrapping your own mind about all the changes and challenges you have to face. I think by learning more about Celiac in general it will help you better understand and communicate your needs with others. Surround yourself with people who care about you and want to see you get well. Anyone else...well...they need to get over it, or you need to get over them.

 

Hmm. If you are eating Gluten Free the mood issues and others should start to resolve themselves (decrease) over time. So it depends how long you have been eating G.F. and if you're sure you've eliminated sources for trace gluten/cross-contamination.

You may also want to try a enzyme helping supplement. I've used Enzymedica - Digest Spectrum with really good results.

 

I also have a LOT of mood issues after eating. Certain foods cause certain moods, so I swing pretty bad sometimes. I totally understand how frustrating it is. It does get better though.


In Topic: Help! Recently Diagnosed...

27 April 2013 - 08:26 PM

Please help!!

 

I have been recently diagnosed with a possible gluten intolerance, and was advised by my doctor to try a gluten-free diet.  It seems that there are thousands of websites on tips and tools of this problem, but where do I start? 

 

 

Any and all help would be greatly appreciated!!

 

Thanks so much!!

 

First thing I did when I decided to try gluten free was sort the kitchen. I live with people who do not cook/eat gluten free. So separating everything was a big help. I have my own corner of the kitchen cabinets where I've looked over all the labels and I know anytime I go there the food is "safe". Start with the obvious foods, but using the websites and tools you have - identify what ingredients in your food labels may contain "hidden" gluten and take it from there.

 

I haven't gotten so far as separate toaster, pots, pans, although I do have separate cooking utensils. I will most likely finish the job once I'm completely off my gluten challenge. 


In Topic: My Update

20 April 2013 - 09:05 AM

hmmm at the rate celiac diagnosis is going, what if you have a family member who has silent celiac, and doesn't even know it yet?  If you show symptoms, why can't she order the test.  it's frustrating that some doctors don't want to give a simple blood test.  Yes, they won't make money off you if you just need a dietary change, but aren't they supposed to help you feel better and get to the root of the problem  :wacko:   do you match up with any of the symptoms here http://www.curecelia.../guide/symptoms  or on page 6 or 7 of this paper http://www.worldgast..._long_FINAL.pdf  if yes, can you either give it another try at your doctor or go see a different one?  

 

good luck!

 

My biggest problem is I'm at the mercy of the public health system where I live. If she can't justify the state paying the cost of the test by more than just symptomology I don't think the cost would be covered. If I had an immediate family member who was diagnosed it would give some justification. 

 

I also tried explaining to her that I am adopted and I have no idea what health/risk factors I have on my paternal side, and only know a few factors on my maternal. It's not out of the realm of possibility that either could have had some gluten issue, but it wasn't enough.

 

 

The problem with assuming that a patient isn't at risk for celiac because "there is no family history of celiac" lies in the fact that

someone has to be first for it to BECOME part of the family history!

 

I was the first one in my family, and I was 53 years old, having exhibited symptoms all of my life.

It does not mean I am the only celiac. It just means I was the first one to be DIAGNOSED.

My father surely died from this thing, but it's too late for him, I'm afraid.

 

This kind of archaic thinking keeps people sick and undiagnosed.

 

I do not have any knowledge about the "celiacsure test", but you need to be consuming gluten for it to be accurate (like all celiac testing) and I did see this on the website:

 

"If you do test negative according to the Celiacsure™ Celiac Test kit, you may not have celiac disease but this is not a guarantee.

If you have been on a gluten free or gluten-reduced diet, you may not have been eaten enough wheat for a long enough time to get a positive test. You may also be a person who does not produce the IgA antibodies required for this test."

 

So, the results may leave you guessing.

 

Your doctor says "go gluten free, what could it hurt?" Well, if you DO have celiac, it is wise to know for sure so she provides necessary follow-up care. While I appreciate her open mind, she is doing you a disservice. IMHO

 

In the end, if you feel better off gluten, that speaks volumes. If you did not have a gluten sensitivity of some nature, you would not notice an improvement.

 

I did read up on the Celiacsure website so I know it's not a sure thing, but it may give me some insight. If I did test positive it might give me some ammunition (so to speak) so I could go back to my Dr. and get additional testing done.

 

I'm continuing to have gluten in my daily diet. It's very hard, but I have at least one meal a day with a hearty helping of glutenous foods.


In Topic: Gluten Free=malt Free? How Do I Find Malt In Ingredients? Frustrated And Conf...

09 April 2013 - 07:33 PM

I'm still learning about all the different hidden meanings in reading food labels. So I don't have any more information to add, except if you try something (because your not sure, and think it's OK) and you have a reaction, you'll have an answer.

 

I suspect I have either Celiac or gluten sensitivity. I've been gluten free for a week and it's been going GREAT. I made a mistake though and ate a Kellog Rice Crispie treat today though and I didn't see "wheat" listed, I missed the "malt flavoring". I got a terrible attack. It took hours to get over it. So now I know, hard lesson, but well learned.