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jmryan83

Member Since 27 Mar 2013
Offline Last Active May 12 2013 11:01 AM
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Topics I've Started

Help With Results

06 May 2013 - 12:04 PM

I should point out that I have zero trust in my current doctor who ordered these tests. It's a long story, and I trust the opinions and knowledge of you forum moderators and participants more than my Dr. at this point.

 

Doc said she was running a Celiac panel. Turned out it was only 2 tests. These are the results:

 

Immunoglobin A, Qn, Serum - Result (264) Reference 91-414

Endomysial Antibody IgA - Result (Negative)

 

Everything else was in range except for my Vitamin D which was very low (14.4) Reference 30.0-100.0

 

My biggest question!

Are the two test she ran conclusive that I'm negative for Celiac?

 

 


Celiacsure/biocard Test

27 April 2013 - 03:35 PM

I received my Celiacsure/Biocard test the other day and was able to take the test within a few minutes.

 

I had some issues getting enough blood to do the sample, but the control line did show and after the 10 minutes were up a faint but distinguishable line was also in the test window.

 

According to the instructions and the website, a line in the test window (no matter how faint) is still considered a positive.

 

Considering I didn't have a full sample of blood and was still able to get a result I'm guessing that it's a very good indicator that I might have more than a gluten intolerance and might actually have Celiac disease.

I'm going to try and get a 2nd opinion from a doctor and see if they will do proper blood tests and labs to confirm. Maybe with my Biocard test in hand as evidence they will be more open to ordering/paying for tests.

 

Anyone have similar results with Biocard (now known as Celiacsure) test? What was your experience with the product? Did it help you any?


My Update

19 April 2013 - 08:29 PM

Well I finally went to my long awaited Dr. appointment day before yesterday.

 

Good news is I don't have diabetes and my cholesterol levels are all normal. 

 

Told her all about all the unusual symptoms though and that I thought it might be Celiac or have a gluten intolerance and that I had tried going gluten free for a week and was starting to feel really good.

I asked about testing and she said I would have to pay for it out of pocket because I don't have any risk factors (ie. immediate family member who was positive). Basically, she advised me to just eat gluten-free cause "what harm can it do?" in her words.

 

So no real answers and I'm kinda bummed. Decided to order Celiacsure test from GlutenPro.com

It's almost like a pregnancy test but for Celiac. Has anyone had any experience with this product? It seems legit and I just want to know if it's Celiac or not so I can make the right choices.

 

What do you all think? Any recommendations/input?


Glutening Before Testing

10 April 2013 - 09:39 PM

I've been trying Gluten Free for a week now, with much success and feeling really good. 

 

To my question. I should probably keep glutening myself till I get tested to not affect the tests.

How much gluten do I really need to intake? (specifics please)

Also, if I take an enzyme support supplement, will that affect anything?

 

Thanks.


Feel Like I'm Poisoning Myself

30 March 2013 - 05:09 PM

My topic title says it all. I feel like I'm poisoning myself everytime I eat something with Gluten in it.

Forum members recommend to keep on a regular diet until testing can be done, but I don't know if I can do it.

I ate some macaroni and cheese today and have been sick all evening. Stomach cramps, diarrhea, and extreme lethargy.

On days when I've tried eliminating gluten I feel an immediate difference in my energy levels and stomach cramps.

 

Worst of all is I rely on my local public health system and it takes a month just to get a GP appointment. I have one about 3 weeks from now, but then I'll have atleast another month before I can see a specialist. I just don't know what to do.

 

Is it dangerous to just stop eating gluten without absolutely knowing if your a Celiac patient?

What's the worst that could happen to me if I just cut out the gluten and see how I feel in a month or two? (besides possibly screwing with any test results)

 

HELP!!!!