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cyclinglady

Member Since 31 Mar 2013
Offline Last Active Today, 07:18 PM
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Posts I've Made

In Topic: Do I Sound Celiac? So Lost And Confused. I Need Help!

Today, 05:02 PM

At this point I feel like a medical anomaly. My doctors told me I'm an unusual case of polycystic ovaries as well. I wouldn't be too surprised if I am part of the select false negative.
 
Do you know how much gluten one would have to ingest and for how long in order to have accurate test results in blood serology and in biopsy? 

 
Thank you for the information on the other types of tests!


Here is a link to the University of Chicago regarding a gluten challenge:

http://www.curecelia...luten-challenge

In Topic: Do I Sound Celiac? So Lost And Confused. I Need Help!

Today, 10:30 AM

Here are all the tests:


-tTG IgA and tTG IgG
-DGP IgA and DGP IgG
-EMA IgA
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

Anemia was pretty much my only symptom at the time of my diagnosis. I guess it was overlooked because 1) I am a woman and 2) I have Thalassemia which is a genetic anemia. "Hemoglobin low? Must be your Thalassemia. Your periods must be heavy." My ferritin (iron stores) would go up and down based on my taking iron supplements. GI doc caught my iron-defiency anemia when I went through menopause. He guessed celiac disease. Luckily, he ordered a complete panel. I have discovered that those family members who have been tested for celiac disease since my diagnosis have NOT had the complete panel. My doc is recommending they get the complete panel especially since my TTG was negative. It is odd, but possible to have a negative TTg but still have celiac disease.

The other test you took just insures that the TTG IGA test is valid.

In Topic: Do I Sound Celiac? So Lost And Confused. I Need Help!

Yesterday, 04:00 PM

Welcome!

I think you need to get copies of all your medical records. You may have had just a celiac screening (TTG and IGA deficiency tests). A complete celiac panel may be in order. In my case, I was only positive one one of the DGPs. Had my GI ordered the celiac disease screening tests, my diagnosis might have been missed.

You are your best health advocate. Do not give up! Something is wrong!

In Topic: Been Eating Wrong

Yesterday, 03:48 PM

How can you tell she isn't a diagnosed Celiac? I guess, I just assumed she was? Maybe she said that in another thread?
Well... For the Celiacs reading along, don't cheat!


SefMom5 posted last August (2014) that she had been gluten-free for a year in order to help heal her thyroid. She talked about getting tested, but not sure she has.

SelfMom5 did you get celiac testing?

In Topic: Is The Gluten Challenge Worth It?

Yesterday, 10:11 AM

I am sorry, but that is a decision you must make for yourself! Educating yourself about celiac disease will help make that decision easier!

I can tell you that I am formally diagnosed (two years) but my hubby has been gluten-free for 14 years. He refuses to do a challenge and I do not blame him as gluten makes him sick (we all know that). He will be the first to tell you that I have received more medical, family and friend support. But he has been doing just fine as many others on this forum who have had to manage their gluten intolerance on their own for all kinds of reasons.

I wish you well!

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