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cyclinglady

Member Since 31 Mar 2013
Offline Last Active Yesterday, 09:52 PM
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#942717 New Here..and Already Messing Up?

Posted by on 23 March 2015 - 08:06 AM

Welcome!

You might want to check out Newbie 101 section. Cross contamination is a very real problem. Here is the link:

http://www.celiac.co...ewbie-info-101/
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#942540 Hormones, Hashi's And Celiac- How Does This All Work Together?

Posted by on 20 March 2015 - 10:00 AM

Yep! Hashi's can take wild swings. I have been running hyper lately. It is really frustrating! My swings were severe the last year leading on to menopause. I experienced perimenopausal symptoms for 13 years!

Night sweats: I bought large bath towels and kept a stack, plus a nightgown change on my bedside table -- I kid you not! Blow dryer left out with a nightlight on in the bathroom because sometimes I was chilled from drenched hair.

Migraines: only had two during that time period and never had them before or since.

Irritability: can blame that on celiac disease, thyroid or perimenopause

Wacky 30 day periods occurred only during the last year. Became severely anemic as a result.

Hot flashes: mostly after menopause.

HRT has been really helpful for me. Eliminated the night sweats. Made my life more manageable. Having insomnia does not make for a fun person. I was on bioidentical HRT on and off. Hubby was the first to mention that I should get back on them! Something to consider combatting the perimenopausal symtoms.

Take care!
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#942348 1St Blood Test Results

Posted by on 17 March 2015 - 07:19 AM

If my doc had not ordered the complete panel, I would not have been diagnosed. My TTg was very low and my total serum IGA was normal. I was positive on one of the DPG tests. My biopsy showed moderate to severe damage.

Keep eating gluten until all testing is complete. A firm diagnosis would be very helpful for your son if you can get it (accommodations at school/university, further testing for other issues like osteoporosis, etc.
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#942221 How Long Before Testing Should I Restart Gluten

Posted by on 15 March 2015 - 11:26 AM

Any medical doctor can order the celiac blood panel. Make sure the complete panel is ordered. They often just order a shorter version to save on costs. If I had not had the complete panel, I never would have received a diagnosis. Not sure how your insurance handles it though. They may want a GI to order it.

Five days of being gluten free should not affect testing. Just get him back in gluten.

If celiac disease is ruled out, then I would strongly suggest going gluten free for up to six months. This forum can help guide you through he gluten free process. It is not just about making sure gluten in not in his food (cross contamination, hidden gluten , etc.)
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#942214 How Long Before Testing Should I Restart Gluten

Posted by on 15 March 2015 - 10:56 AM

He did NOT get tested for celiac disease.
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#941693 Diarrhea For Over A Month While Gluten Free?

Posted by on 07 March 2015 - 10:41 AM

I think you need more time. Time to make sure you are not getting cross contaminated, eating hidden sources of gluten, etc. It takes months to recover. Remember, gluten sets off an autoimmune response.

Then there are the intolerances that go along with a damaged gut. Eat things that are cooked through and easy to digest. Eating lots of raw fruit and veggies is not the thing to do when you gut is wreaked! You can eat those things later. Maybe that green juice is causing you problems.

I am allergic to garlic and the entire family: leeks, onions, etc. This is one food family that I have not been able to overcome despite being gluten free for two years. So, even though garlic has all these healing properties, I can not eat them.

Keep a food journal. You might be surprised.
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#941460 My Mother Has Been Diagnosed With Celiac And Diverticulosis

Posted by on 04 March 2015 - 03:04 PM

Check out the University of Chicago's celiac website. It has some great information. And.....all first-degree relatives should get tested even withou symptoms (some of us have no symptoms at all). Get tested!
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#941420 Ucsb Student In Fall

Posted by on 03 March 2015 - 10:53 PM

Hey, there is an In N Out less than four miles away! We eat there safely! Tell them you have a gluten allergy.
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#941419 Ucsb Student In Fall

Posted by on 03 March 2015 - 10:35 PM

I think it is about as safe as you are going to get at a university. Are the baked goods certified and prepackaged? Where are the gluten-free toaster ovens kept? Is someone going to throw in gluten-containing toast in the gluten-free toaster oven to save time? Are they baking gluten-free baked goods in dedicated areas using gluten-free equipment?

Can you go in a tour?

Can you cook in the dorm shared kitchen? Then bring a bin of cooking stuff to stash in your room.

It irks me that the university requires you to purchase a meal plan, yet they can not guarantee a gluten-free meal fit for a person with celiac disease. Not sure that UC schools require this but CSU schools do. Search within this forum as this topic has come up in the past.

Hummm... I am going to research this myself!

But, I can say that we survived a Baltic Sea cruise and a two week trip to England. My husband travels for work. So, it can be done.

Let's see what others have to say.
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#941413 Is This Celiac?

Posted by on 03 March 2015 - 09:34 PM

Welcome!

Here is a link to Mary Shomon site regarding thyroid testing:

http://thyroid.about.../bloodtests.htm

These are the celiac tests:


-tTG IgA and tTG IgG
-DGP IgA and DGP IgG
-EMA IgA
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
-endoscopic biopsy - make sure at least 6 samples are taken

The University of Chicago's celiac disease website has a wealth of information and I encourage you to check it out.

KEEP EATING GLUTEN UNTIL ALL TESTING IS COMPLETE!

All lot of thyroid sites are recommending a gluten free diet. But many folks who have Hashi's also have celiac disease. Testing for celiac disease should be done before trying a gluten-free diet. If you do have celiac disease, going back on gluten for testing can be horrible! If tests results are negative, then by all means, try a gluten-free diet. Most folks need a definitive diagnosis in order to maintain the diet for life. I can tell you that going gluten free has not helped my thyroid at all! I have been gluten-free for two years and I am currently on a hyper swing.

Welcome to the forum and let us know how it goes!
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#941388 How Long After Starting A Gluten Free Diet Will Symptoms Recede?

Posted by on 03 March 2015 - 02:40 PM

No, it can takes months to YEARS to have symptoms resolve! Some people do not have any symptoms at all!

I would strongly do some research. The University of Chicago has a great celiac website and discusses testing. Doctors, even GI doc get it wrong all the time. Just read all the threads in this forum.

You do have to be eating gluten to get tested. Since you are just mildly positive, I would take the blood test over in a few weeks after consuming gluten and ask for biopsies (up to six).

I was barely positive and my biopsy showed a moderate to severe damage. My only symptom was anemia at the time of my diagnosis. ,

You could also still have a parasite issue on top of celiac disease. Was that eliminated?

Here is a list of the tests:

-tTG IgA and tTG IgG
-DGP IgA and DGP IgG
-EMA IgA
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
-endoscopic biopsy - make sure at least 6 samples are taken

Welcome to the forum and let us know how it goes!
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#941076 Ucsb Student In Fall

Posted by on 27 February 2015 - 10:37 AM

Congratulations on getting accepted. Is SB short for Santa Barbara?
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#940886 Positive Biopsies, Negative Serology - ?

Posted by on 24 February 2015 - 10:59 AM

My ferritin (iron stores) was a 2. I refused the transfusion even when my hemoglobin was at my lowest (7) and that is the number to be concerned about! Taking iron and going gluten-free improved my hemoglobin level fast and the iron stores continued to build for six months. That is when I stopped supplementation. Take that iron with Orange juice for better absorption. Old fashioned molasses is chock full of iron too. Of course, I do not know your situation, so do your research.

It is nice not to be out of breath anymore!
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#940667 I'm Totally Lost. Help Please?

Posted by on 19 February 2015 - 06:36 PM

Hi! Here is some information regarding testing from the University of Chicago:

http://www.curecelia...5_Diagnosis.pdf

http://www.curecelia...uide/factsheets

Looks like they prefer to see patients who have eaten gluten daily for 12 weeks for both biopsy and blood test.

Unfortunately, your stomach issues will probably return. But getting a diagnosis is important. I have one (dx March 2013), but my husband does not. He went gluten free based on the poor advice of my allergist and his GP 14 years ago. He feels great now, but says that I get way more support from family, friends and medical staff.

It sounds like your doc performed the endo, but did not take samples (biopsy) and that is a shame! I had no visible damage, yet biopsies revealed moderate to severe damage. Anemia was my only symptom at the time. No tummy issues, though my GI wrote down that I had them (I did but only if I ate eggs, dairy or nuts which I have been allergic to most of my life!). I think he did it for insurance approval.

Continue your research and let us know how you are doing. We are here to help!
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#940359 How Often To Retest Family Members?

Posted by on 13 February 2015 - 08:14 PM

Please have the full panel run! I was only positive on one of the tests in the panel. If my doctor had only ordered the TTG tests, I never would have been diagnosed!

My 13 year old tested negative but will get retested every two years or sooner if symptoms present.
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