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cyclinglady

Member Since 31 Mar 2013
Online Last Active Today, 03:06 PM
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#933323 Want To Know About Anti Gliadin Antibody Test

Posted by cyclinglady on 23 October 2014 - 03:00 PM

Kid testing is important as celiac disease can impact their development. Better to be safe than sorry.
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#933271 Too Extreme Or Just The Right Medicine?

Posted by cyclinglady on 23 October 2014 - 09:03 AM

That food journal? Keep in mind that your transit time may be off for days. I had a BM everyday, but my transit time was three days long. What you eat today may not be processed for days and your reaction might be delayed as a result. Honestly, supplements (excluding probiotic or enzymes) can be be hard to digest for the first few months.
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#933247 New And Conflicted

Posted by cyclinglady on 23 October 2014 - 05:56 AM

With a positive blood test, she probably has Celiac Disease. The biopsy should confirm it. But even if the biopsy in inconclusive (think about it....the small intestine is vast), the next step would be diet. If she gets relief, then you have your answer.

I know you are a RD, but here are some tips from from our "Coping" section:

http://www.celiac.co...ewbie-info-101/

BTW, I was barely positive on my blood test (just one celiac disease test was positive) and I had moderate to severe damage on my biopsy.

If the biopsy is negative, I would try the diet and not wait. Check out the University of Chicago's celiac website. Or get another opinion. My kid tested negative (she has both parents with celiac disease) and will continue to get tested every few years because we both do not display intestinal issues (I had anemia). But if she were positive, I would put her on the diet even with a negative biopsy. You daughter is growing. So many things like bones, puberty could be delayed or damaged. Is that worth it?

Just do some more research, please!
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#932598 Feeling Angry!

Posted by cyclinglady on 13 October 2014 - 07:41 AM

Everyone handles a glutening differently. A few days to a few weeks. Hope your son feels better!

About the school.... Just because they can or must accommodate does not mean that it will always be safe. Cross contamination and not following procedures can and does happen. Ask to be walked through gluten-free food handling procedures and offer suggestions. Our local university claimed to be gluten free, but they baked and mixed dough on pans that previously held gluten (and the mixer was not clean!). They did not change gloves or used utensils (knives and spoons that had contact with gluten.). The head chef was so proud and told me they even had a gluten free employee advising them. I questioned her and she did not have celiac disease nor any health issues with gluten!
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#932214 Helppppp

Posted by cyclinglady on 06 October 2014 - 06:55 PM

Is the cough related to bronchial tubes (spasms) or lungs? My brothers have asthma and they could never play sports. One chronically clears his throat with a little cough. Sounds like your son's cough is worse.

Are his meds gluten free? Is the house gluten free? Pet food? School?

Allergies to mold in your house? Pets, milk, eggs, nuts? Has he been tested by the allergist? Anything positive?
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#932048 Quick Question On Recent Blood Test

Posted by cyclinglady on 04 October 2014 - 10:22 AM

Well, I am not an expert, nor am I a doctor, but you did test positive on one of the test specific to gluten/celiac disease. I too, tested "mildly positive" and my biopsy via endoscopy showed moderate to severe damage. My only known symptom was anemia. I was shocked!

Keep eating gluten until all testing is complete.
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#932007 Trying To Figure Out What Is Wrong

Posted by cyclinglady on 03 October 2014 - 09:49 PM

Welcome!

Let me put it bluntly.....you need a new doctor.

You have one positive on the panel. Now, you should see a GI doctor for an endoscopy (not a colonoscopy) for a visual and biopsies. Celiac Disease damages the small intestine--not the large. I tested positive on just two of the tests and ended having moderate to severe damage when I had my biopsies done. My total cholesterol always hovered under 120 and I was praised by my doctors. Have since found out that low cholesterol is just as bad as having too high! Since I have been gluten free and have healed, my cholesterol is up to a healthy 176 with triglycerides at 48 and HDL at 61 from 37.

Keep eating gluten until all testing is complete. Go to the University of Chicago's celiac website for more testing information.

I hope you feel better soon.
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#931350 Gluten Free Since 2010 And Still Suffering.

Posted by cyclinglady on 25 September 2014 - 08:13 PM

How is your gallbladder? Still functioning? Any other food intolerances?
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#928259 Even gluten-free Foods Triggering Reaction After Initial Glutening?

Posted by cyclinglady on 23 August 2014 - 09:47 AM

Here are my ideas (and they may be way off)....

My husband went gluten free 13 years ago. I fed him purchased gluten-free bread and goodies and he did not have any issues. I was then diagnosed and I started eating gluten-free products. I thought I was getting glutened. Turns out it was Xanthan gum found in many certified gluten-free products. Anyone can develop intolerances at any time. I still can not consume Xanthan gum.

Have you had your gallbladder checked out? A HIDA scan? I never presented with classic gallbladder symptoms. No stones, just a non-functioning GB that would work on and off over the years. Finally, during the last four months prior to removal, I was getting sicker and sicker. There was no correlation with foods for my pain. It became infected and they had to find the infection. From CTs to ultrasound, every test came back normal except the HIDA.
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#926452 Desperate For Answers! New To The Rash "party"

Posted by cyclinglady on 05 August 2014 - 06:19 AM

I am not a DH expert (since I have not experienced it), but previous posters have described it as being insanely itchy. So, it could be DH. Cold compresses can help. Do not take steroids (even topically) and search within this forum for proper testing procedures you can share with your doctor. It is tricky to get a skin biopsy. Continue to consume gluten until all testing has been completed.

I hope you find your answers!
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#925896 The What's For Dinner Tonight Chat

Posted by cyclinglady on 31 July 2014 - 10:14 AM

Grilling chicken wings and zucchini tonight with salad.

Prepping food for camping this weekend at the beach. Tomorrow afternoon, I will be reading and drinking a glass of wine with my old faithful lab lying next to me in the sand! Can not wait!
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#925884 Liver Test Readings.

Posted by cyclinglady on 31 July 2014 - 09:03 AM

So, reading some of your older posts, I saw that your siblings have been diagnosed with celiac disease. Your doctor just told you to go gluten free without testing?

Anyway, if you have celiac disease (highly likely based on your postings), it can mess with your liver from some of my research. Adhering to the gluten-free diet should help resolve liver issues (as other previous posters have indicated) or it could be something else. I would recommend making another appointment to see your doctor. If he or she is out, then reschedule. Or find another doctor.
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#925238 Is This Likely Celiac Disease?

Posted by cyclinglady on 24 July 2014 - 10:30 PM

Sounds like you could have celiac disease. Here is a link to the University of Chicago's website regarding testing:

http://www.curecelia...onals/screening

I have Hashi's with super high antibodies too! Having multiple autoimmune disorders, like celiac disease. And Hashi's, is common. I only had anemia as my main symptom for celiac disease.
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#920721 Carry-On Dinner While Flying?

Posted by cyclinglady on 18 June 2014 - 12:57 PM

PF Chang's at the Atlanta airport was great! We are eating there on the way back home.

Bad news that since we missed our flight to London (mechanical difficulties) we did not get the gluten-free meals we ordered because the new tickets for a new flight were re-issued less than 72 hours (yep, that is the policy). Of course two Delta employees both verified that we would still get gluten-free meals. Good thing I brought lots of food.

Lesson learned.....bring your own food as a back-up on a trip!
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#919405 Daughter Still Nauseated 6 Months After Going gluten-free (Recent Antibiotics...

Posted by cyclinglady on 06 June 2014 - 10:43 PM

That is a lot of supplements for such a young kid! I would suggest stopping them all to see if that brings relief. Gee, the fish oil alone, if not taken with the first bite of food during a heavy meal, can make even me sick or is it gummy fish oil? I have been taking it to increase my HDL to help with heart disease because I am old. Why is she taking it? Why not fish, whole foods? Why does she even need the bile? Have you confirmed that her gallbladder is not functioning via a HIDA scan? Have any of the dosages been adjusted for her weight? Where in the heck is that stuff manufactured at?

My old retired MD would only add one thing at a time to allow the body to get used to it. It also allowed him to determine if you had a reaction to the meds or supplements he recommended. I would continue the probiotics because of the round of antibiotics and because they are generally very safe, but cease everything else now.

Does she have intolerances to a food like milk?

Kids heal so much faster that adults, I am surprised that she is not feeling better. A visit to a Ped GI is in order. Plus, making sure she is not getting gluten. Time for another celiac antibodies test......

I hope she feels better soon!
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