I have been gluten free for over a year but seem to be getting more abd pain and heartburn now. My holistic chiropractor found inflammation in my liver and then my gall bladder has been acting up too. I continue to eliminate more foods and am losing weight and energy levels are plummeting. I am now using digestive enzymes with every meal and have seen small improvement. I'm not normally very emotional but had to have a good cry last night over all the foods I've given up. My regular doctor is of no help at all. Not sure what else to do. I know how you feel Matt.
Welcome to the forum! Have you had a HIDA scan of your gallbladder?
That food journal? Keep in mind that your transit time may be off for days. I had a BM everyday, but my transit time was three days long. What you eat today may not be processed for days and your reaction might be delayed as a result. Honestly, supplements (excluding probiotic or enzymes) can be be hard to digest for the first few months.
With a positive blood test, she probably has Celiac Disease. The biopsy should confirm it. But even if the biopsy in inconclusive (think about it....the small intestine is vast), the next step would be diet. If she gets relief, then you have your answer.
I know you are a RD, but here are some tips from from our "Coping" section:
BTW, I was barely positive on my blood test (just one celiac disease test was positive) and I had moderate to severe damage on my biopsy.
If the biopsy is negative, I would try the diet and not wait. Check out the University of Chicago's celiac website. Or get another opinion. My kid tested negative (she has both parents with celiac disease) and will continue to get tested every few years because we both do not display intestinal issues (I had anemia). But if she were positive, I would put her on the diet even with a negative biopsy. You daughter is growing. So many things like bones, puberty could be delayed or damaged. Is that worth it?
Everyone handles a glutening differently. A few days to a few weeks. Hope your son feels better!
About the school.... Just because they can or must accommodate does not mean that it will always be safe. Cross contamination and not following procedures can and does happen. Ask to be walked through gluten-free food handling procedures and offer suggestions. Our local university claimed to be gluten free, but they baked and mixed dough on pans that previously held gluten (and the mixer was not clean!). They did not change gloves or used utensils (knives and spoons that had contact with gluten.). The head chef was so proud and told me they even had a gluten free employee advising them. I questioned her and she did not have celiac disease nor any health issues with gluten!
Is the cough related to bronchial tubes (spasms) or lungs? My brothers have asthma and they could never play sports. One chronically clears his throat with a little cough. Sounds like your son's cough is worse.
Are his meds gluten free? Is the house gluten free? Pet food? School?
Allergies to mold in your house? Pets, milk, eggs, nuts? Has he been tested by the allergist? Anything positive?
Well, I am not an expert, nor am I a doctor, but you did test positive on one of the test specific to gluten/celiac disease. I too, tested "mildly positive" and my biopsy via endoscopy showed moderate to severe damage. My only known symptom was anemia. I was shocked!
You have one positive on the panel. Now, you should see a GI doctor for an endoscopy (not a colonoscopy) for a visual and biopsies. Celiac Disease damages the small intestine--not the large. I tested positive on just two of the tests and ended having moderate to severe damage when I had my biopsies done. My total cholesterol always hovered under 120 and I was praised by my doctors. Have since found out that low cholesterol is just as bad as having too high! Since I have been gluten free and have healed, my cholesterol is up to a healthy 176 with triglycerides at 48 and HDL at 61 from 37.
Keep eating gluten until all testing is complete. Go to the University of Chicago's celiac website for more testing information.
My husband went gluten free 13 years ago. I fed him purchased gluten-free bread and goodies and he did not have any issues. I was then diagnosed and I started eating gluten-free products. I thought I was getting glutened. Turns out it was Xanthan gum found in many certified gluten-free products. Anyone can develop intolerances at any time. I still can not consume Xanthan gum.
Have you had your gallbladder checked out? A HIDA scan? I never presented with classic gallbladder symptoms. No stones, just a non-functioning GB that would work on and off over the years. Finally, during the last four months prior to removal, I was getting sicker and sicker. There was no correlation with foods for my pain. It became infected and they had to find the infection. From CTs to ultrasound, every test came back normal except the HIDA.
I am not a DH expert (since I have not experienced it), but previous posters have described it as being insanely itchy. So, it could be DH. Cold compresses can help. Do not take steroids (even topically) and search within this forum for proper testing procedures you can share with your doctor. It is tricky to get a skin biopsy. Continue to consume gluten until all testing has been completed.
So, reading some of your older posts, I saw that your siblings have been diagnosed with celiac disease. Your doctor just told you to go gluten free without testing?
Anyway, if you have celiac disease (highly likely based on your postings), it can mess with your liver from some of my research. Adhering to the gluten-free diet should help resolve liver issues (as other previous posters have indicated) or it could be something else. I would recommend making another appointment to see your doctor. If he or she is out, then reschedule. Or find another doctor.