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Member Since 31 Mar 2013
Online Last Active Today, 04:21 PM

#939122 New To This Group

Posted by on 26 January 2015 - 04:01 PM

She could very well have celiac disease which is an autoimmune response triggered by gluten found in rye, wheat and barley. It is not an allergy to wheat, though it is possible to have both.

Here is some information about celiac disease and testing from the University of Chicago. Any MD can test. You must make sure that she is eating gluten daily until all testing is complete.


I hope she feels better soon!
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#938832 Very Discouraged!

Posted by on 21 January 2015 - 08:34 PM

One of our forum members is an MD (newborns - neonatologist) with celiac disease. She finally had to ban gluten from her house as she was getting glutened by her kids! I am sure her kids are healthy without gluten on a daily basis.

Hubby and I are both gluten free. Our kid is gluten-free in the house. She gets pre-packaged gluten food in her lunch. She eats at restaurants and at her friend's house. She washes her hands every time she arrives home (that includes her friends and helps with germs too!). She is super healthy and eats better than her gluten eating friends!

I keep a big bin of kitchenware at my parent's house, along with a five-day cooler. Haul that stuff to my parent's lake house too where 15 or more stay. Keeps us safe while we are visiting. You might consider this for his job too.
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#938258 Can't Put On Weight

Posted by on 11 January 2015 - 05:17 PM

do you have any idea of how many calories you are consuming daily? i have this same problem (not being able to keep weight on) and discovered i wasn't eating nearly enough calories to gain weight (plus, i have a very high metabolism) i found this info out by plugging everything i ate into a phone app called 'my fitness pal' - most people use this when they are dieting, but i (and some others on here) found that it also works in "reverse" :) also, useful to try to keep a food journal when you're on the go. just whip out your phone and plug in your meal. it also has a barcode scan function (that actually *works* lolz) which makes it that much easier.

if you can, eat more healthy fats: peanut butter, almond butter, avocados, etc. i have also heard that coconut oil is good for gaining (but haven't tried a regimen of it yet) some people just put a spoonful of it into their morning beverage (i keep forgetting! ha, i'm sooooo not a morning person!! ;) )

Put that jar of coconut oil by the coffee pot and then you will remember to use it! I use refined as i do not like a coconut-tasting coffee. I snack on fresh butter! I kid you not! Plus, I just poured whipping cream into my plain Greek yogurt and had a blob of peanut butter just before that. Like you said, fat really helps!

After two years, I am eating dairy. I think I am over the lactose intolerance. Casein could still be a slight issue (it is during moldy days) nothing that an antihistamine can not help. My brother is waiting for Spring to see how I fare during pollen season. We have shard the same allergies since we were kids. Still allergic to garlic though.
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#938095 I Dont Really Follow The Diet Im Suposed To

Posted by on 08 January 2015 - 08:23 PM

I am sorry that you are struggling to maintain a gluten free diet. I know how important it is to fit in (I have a 13 year old daughter and, believe it or not, I was once a teen). I am not going to give you a lecture about it. You probably know the consequences like osteoporosis, anemia, malnutrition which is critical for a growing teen.

When is it hardest for you to avoid gluten? Home, restaurants or with friends?
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#938082 Newbie Clueless In Pain! Help!

Posted by on 08 January 2015 - 04:29 PM

I do not know why it was on and off. Attacks were so severe that I always passed out. After waking, I would vomit and then have intestinal pain that lasted for up to 12 hours. I went to many ERs, but no one was able to diagnose me. In the end, I passed out at a company dinner in Las Vegas. By this time, my gallbladder was infected. I had been feeling bad for two months. The ER doc suspected appendicitis but the surgeon suspected gallbladder and ordered a HIDA scan. Surgery was my only option. Scary to have it away from home! My work friends were so supportive until my husband flew in.

My Dad is one of seven and six of his siblings have had their gallbladders removed. I am one of 27 first cousins and the five oldest have had theirs removed. Of those, that have had their gallbladders removed, three of us have celiac disease. The others do not want to give up gluten, so they refuse testing. Ugh!

I can tell you that my only symptom at the time of my celiac disease diagnosis was anemia. I was shocked!

I hope you find an answer!
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#938054 Newbie Clueless In Pain! Help!

Posted by on 08 January 2015 - 07:05 AM

Make sure that gallbladder scan is a HIDA. A HIDA scan will check for functionality of the gallbladder. Other tests like an ultrasound will only catch stones. My HIDAa revealed 0% functionality and was infected -- no stones. I had gallbladder pain on and off for 20 years (it would work and then not work) and surgery was my only option. It is a family curse!

But you sound like you could have celiac disease too. Have you been tested?
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#937953 Girl Scouts Rolls Out 3 New Gluten Free Cookies

Posted by on 06 January 2015 - 11:59 AM


I would recommend contacting your local council and asking which troop near you has opted to sell gluten-free cookies. You may have to leave your number, but someone from that troop will call you back. They can deliver cookies to you! And you might meet a nice Girl Scout who can supply you for life!
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#936861 Shared Kitchen With Landlord Who Loves To Bake

Posted by on 15 December 2014 - 07:08 AM

So, true. My advice was strictly from a viewpoint of celiac disease and not a wheat allergy.

I confess I do take an anti-histamine when I go to my SIL's house because of her cat!
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#936786 Celiac For 1 Year, Having Trouble Eating Almost Anything For The Last Month

Posted by on 13 December 2014 - 07:03 PM

I have been gluten free for over a year but seem to be getting more abd pain and heartburn now. My holistic chiropractor found inflammation in my liver and then my gall bladder has been acting up too. I continue to eliminate more foods and am losing weight and energy levels are plummeting. I am now using digestive enzymes with every meal and have seen small improvement. I'm not normally very emotional but had to have a good cry last night over all the foods I've given up. My regular doctor is of no help at all. Not sure what else to do. I know how you feel Matt.


Welcome to the forum! Have you had a HIDA scan of your gallbladder?
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#933885 Overwhelmed By My Intolerances

Posted by on 01 November 2014 - 09:23 AM

Those tests are not very accurate, but it is a start! Try keep a food log. Rotate your foods around. Test the foods on your list.

Do you have celiac disease? You might find with healing that many of your intolerances will diminish or go away all together with time (months or years depending on damage).

Oh, eat dinner for breakfast!
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#933323 Want To Know About Anti Gliadin Antibody Test

Posted by on 23 October 2014 - 03:00 PM

Kid testing is important as celiac disease can impact their development. Better to be safe than sorry.
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#933271 Too Extreme Or Just The Right Medicine?

Posted by on 23 October 2014 - 09:03 AM

That food journal? Keep in mind that your transit time may be off for days. I had a BM everyday, but my transit time was three days long. What you eat today may not be processed for days and your reaction might be delayed as a result. Honestly, supplements (excluding probiotic or enzymes) can be be hard to digest for the first few months.
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#933247 New And Conflicted

Posted by on 23 October 2014 - 05:56 AM

With a positive blood test, she probably has Celiac Disease. The biopsy should confirm it. But even if the biopsy in inconclusive (think about it....the small intestine is vast), the next step would be diet. If she gets relief, then you have your answer.

I know you are a RD, but here are some tips from from our "Coping" section:


BTW, I was barely positive on my blood test (just one celiac disease test was positive) and I had moderate to severe damage on my biopsy.

If the biopsy is negative, I would try the diet and not wait. Check out the University of Chicago's celiac website. Or get another opinion. My kid tested negative (she has both parents with celiac disease) and will continue to get tested every few years because we both do not display intestinal issues (I had anemia). But if she were positive, I would put her on the diet even with a negative biopsy. You daughter is growing. So many things like bones, puberty could be delayed or damaged. Is that worth it?

Just do some more research, please!
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#932598 Feeling Angry!

Posted by on 13 October 2014 - 07:41 AM

Everyone handles a glutening differently. A few days to a few weeks. Hope your son feels better!

About the school.... Just because they can or must accommodate does not mean that it will always be safe. Cross contamination and not following procedures can and does happen. Ask to be walked through gluten-free food handling procedures and offer suggestions. Our local university claimed to be gluten free, but they baked and mixed dough on pans that previously held gluten (and the mixer was not clean!). They did not change gloves or used utensils (knives and spoons that had contact with gluten.). The head chef was so proud and told me they even had a gluten free employee advising them. I questioned her and she did not have celiac disease nor any health issues with gluten!
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#932214 Helppppp

Posted by on 06 October 2014 - 06:55 PM

Is the cough related to bronchial tubes (spasms) or lungs? My brothers have asthma and they could never play sports. One chronically clears his throat with a little cough. Sounds like your son's cough is worse.

Are his meds gluten free? Is the house gluten free? Pet food? School?

Allergies to mold in your house? Pets, milk, eggs, nuts? Has he been tested by the allergist? Anything positive?
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