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Rikki Tikki

Member Since 23 Jan 2004
Offline Last Active Mar 22 2010 05:27 PM

Posts I've Made

In Topic: Should My Whole Family Get Tested?

17 March 2008 - 07:09 PM

YES YES YES! My brothers and mother were tested after I was diagnosed, they didn't have symptoms but had all the damage that comes with it, villi were gone, bones were affected, so have them tested

In Topic: I Am Bummed! I Just Read The Aunt Jemima Can No Longer Say That Their Syr...

30 December 2007 - 03:29 PM

This is my all time favorite:
1 Cup Sugar
1/2 C. light corn syrup
1/4 C. water
1/2-3/4 tsp. cinnamon
1/2 C. evaporated milk
In a small saucepan combine sugar, corn syrup, water and cinnamon
Bring to a boil over medium heat stirring constantly, cook and stir for 2 minutes more, remove from heat and cool for 5 minutes, stir in the evaporated milk
Makes 1 2/3 cups

In Topic: No External Symptoms - Only Biposy - Anyone Else

30 December 2007 - 07:52 AM

That is what happened to my brother, after I was diagnosed and then my mother was my brother went in to have the biopsy, his villi was gone and his bones had been affected, yet he had no other symptoms. It's good that you found out while he is young so the diet will be easier for him to follow. I would ask that the doctor test you, his father and any siblings.

In Topic: "continuing Villous Atrophy" On A gluten-free Diet

28 December 2007 - 06:08 AM

I think you also need to double check you are not somehow ingesting gluten, double check everything. Also, if you are not healing it could be refactory sprue, which may mean you need to be on steriods, that is what happened with me and now I am fine

In Topic: Have You Ever Gone Back To A Dr. Who Was Wrong...

28 December 2007 - 06:04 AM

I think it's worth letting the doctor know, just don't blame him. My mom had gotten really sick a couple of years ago so I took her to the doctor, I asked him to check her for celiac, although her symptoms were not the same as mine, and he poo=pooed me, but did the blood test. I told him I had been diagnosed by both blood and biopsy, he said he didn't really believe in celiac, anyway long story short he took the blood along with checking for deadly diseases and when we went back 2 weeks later her blood work had come back highly positive and he had educated himself on the disease. My brother also went to the doctor and the doctor asked why would you want to go on such an awful diet if you aren't sick, Anyway, after my mom was diagnosed he went in for testing, his villi was gone, it had started affecting his bones, all without any symptoms. So, if it helps one person it's worth telling him in my opinion.

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