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starrymazed610

Member Since 01 Apr 2013
Offline Last Active Apr 17 2013 09:17 AM
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Posts I've Made

In Topic: Biopsy Positive- Now Doc Wants Blood Work?

08 April 2013 - 03:44 AM

Thanks for the responses! I have been gluten free for over a week now, regardless. I know that something is not right with all my stomach issues. I have been feeling a lot better since going gluten-free, but the craziest thing I've noticed is that my throat has not been "growling"! I have noticed my children all have that issue too. 

I guess right now I will wait and see what my GI doc says and go from there. 


In Topic: Biopsy Positive- Now Doc Wants Blood Work?

05 April 2013 - 04:39 PM

Well, i got my labcorp results tonight: 

 

 


Test Low Normal High Reference Range Units Immunoglobulin A, Qn, Serum   123   91-414 mg/dL T-Transglutaminase (Ttg) Iga   <2   0-3   T-Transglutaminase (Ttg) Igg   3   0-5 U/mL Deamidated Gliadin Abs, Igg   4   0-19 units Deamidated Gliadin Abs, Iga   7   0-19 units Endomysial Antibody Iga   Negative   Negative  
 
 
 
NEGATIVE for celiac??? This is completely frustrating. I haven't talked to my doctor yet, but how can I have a positive biopsy????

In Topic: Biopsy Positive- Now Doc Wants Blood Work?

01 April 2013 - 12:12 PM

Thank you for the responses. I already had a CBC and some blood work for deficiencies done. This is just for Celiac, I believe. The doctors office just called me and told  me they are faxing over the paper work to the lab so I can go and get my blood drawn tomorrow. When the doctor called me the other day to give me the results of the biopsy  he told me he wanted to get blood work taken next, and if that was positive then I would have to meet with a Registered Dietitian and have my children tested. When I mentioned the fact that there seems to be a lot of false negatives for the blood work, he agreed, and said that the biopsy is still the gold standard for diagnosing, yet fell short of actually diagnosing me. I guess that is why I am frustrated. I have spent years not feeling well, and feel as though these doctors admit possible celiac, but fall short with actually diagnosing me. Problem is, it is hard for some doctors and family to take me seriously without an "official" diagnosis...