I am newly returning to these boards, as I once frequented them a few years ago.
In 2008, I heard about Celiac's and read a list of frequent symptoms. I have always had too many stomach issues to mention, and so I made an appt with a GI dr, but immediately went gluten free. I was gluten-free for a few weeks when I visited the dr and explained what was going on. They gave me the barium test, blood work for celiacs, and then I had an upper endoscopy. The results left me more confused than ever. The blood work was negative for Celiac, but the other tests found a hiatal hernia, GERD, a stomach ulcer, and possible slow emptying stomach. The results of the biopsy stated there was damage to the villi but when I went in for a follow up, I was told I did NOT have celiac disease.
Since then, I had another baby, developed more food (fruit and and vegetable) allergies, and stomach issues progressed. I was kinda gluten-free on and off, here and there but not really. I recently moved and found a new GI dr. I scheduled an appt with him, because at times, the bloating is unbelievably painful and my stomach hurts so bad that I cannot eat anything without pain. This comes and goes. He did routine blood work and scheduled another upper endoscopy. After the endoscopy, he told me they found inflammation of my esophagus and stomach and that biopsies were taken. The biopsies were positive for Celiacs he told me, but NOW he wants to have blood work to confirm. I have only been gluten-free for two days now, so I am sure it wouldn't affect the blood test, but my fear is that it will be negative again and then I'll be back to where I was before- not knowing whether I have it or not.
Has this happened to anyone else? I have three children who have stomach issues, too. My oldest had an upper endoscopy when she was eight and it was negative.
Any input would be greatly appreciated!!