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Member Since 06 Apr 2013
Offline Last Active Apr 19 2013 01:52 PM

Posts I've Made

In Topic: First Week Gluten Free - Looking For Answers

10 April 2013 - 07:44 AM

Hi all! I just returned from a refreshing walk outside. The weather has warmed up here in PA and its nice to have some "me" time out in the sun. Hoping it helps boost my vitamin d too.

Monday was a long day of doctors apps and I havent gotten to update you yet. I saw my primary and a neuropathic. 1st time with the neuropathic and I was overall happy. He agreed for me to cut out wheat for the most part. He suggested only sprouted wheat. Don't know a whole lot about that other than seeing it in refrigerator aisle at store. I think I will just stick to no gluten. He also said with my digestive issues to cut out dairy :( so far I have managed and it actually hasn't been as bad as I thought. Cheese and yogurt are the main things I miss. And he also said no peanut butter, not sure why on that one but I'll give it a try. With all of these restrictions I haven't cut out soy completely yet. Mostly I am only eating fruit, veggies and no processed foods so I am staying away from a lot I think. He also suggested poultry like gotta ski. I really didn't want to do it, but if I'm going to get better its worth a shot. I had about 4ozs last night. Wasn't pleasant but we'll see.

The neuropath seems to think a lot of my problems stem from my BC pill. I've been on it about 8 years with no problem, but at his suggestion I'm stopping. After some research I found a lot of women with bad side effects including IBS which you'd never think related. So just a thought for anyone reading this on BC, do some research! I'm hoping all these things combined start to improve my health. I feel pretty good aside from the neck pain a headaches. My primary wrote me script for physical therapy so I am looking forward to that.

The only other major concern is my insomnia. I was doing amitriptolyne but neuropath suggested 5 htp a natural supplement that produces serotonin and enhances mood, lessens anxiety etc. I had a wonderful nights sleep the first night on it, but last night I tossed and turned for hours and slept on and off all night. Going to give it another try tonight. Warning: you cannot take 5 htp with any other serotonin drug. The insomnia, neck pain and headaches are my most bothersome symptoms right now.

Have to run, but I hope everyone is well!

In Topic: First Week Gluten Free - Looking For Answers

07 April 2013 - 05:06 PM

Wow, I can't believe so many have taken the time to respond. Thank you, thank you, thank you!

For starters, I will ask the doctor tomorrow about being officially tested. What I didn't mention in my OP was that my wedding is on April 20th and I am trying to do everything I can to get this under control before then. I realize full recovery will take much longer, just trying one step at a time. We also have a honeymoon planned for after the wedding and I would like to be able to enjoy some of it. I realize this may be hard while on vacation though :( For these reason, I will probably continue on the gluten free diet for at least a month to see if I have any improvement instead of going back on it in order to be tested. As much as I would like an official diagnosis.

I looked and the tuna had soy as an ingredient. The first time I had severe problems was when I ate a can of it. Friday I had dry roasted edamame (soy beans) in the afternoon and awoke at 3am, my stomach ache and burping still haven't resided. Im burping as i sit here typing! Its so weird, as this is all new to me within the last few weeks. No burping problems before then. It is probably in my best interest to drop soy as well. I never had a problem with soy before though? I eat tofu all the time being a vegetarian. A little disheartening to stop gluten, soy and meat, but as this point I'm willing to do anything to get better. Perhaps after the wedding/honeymoon I will seek testing, unless I feel so well that I don't need it.

I do think the mono plays some role in this puzzle as before then I was completely healthy. And not to give TMI but yes, tramadol gave me constipation too! I was actually wondering if my recent stomach issues were from that. Ive had to take a laxative as i am usually very regular. Today was the first day not taking it and my pain was bearable with no other bad symptoms (I was only on it a week). I still need the other for sleep as I can't fall asleep for the life of me. I want to treat my symptoms not mask them, I am a very big advocate of that. It's just so hard when you don't feel well!

Does anyone else here have a problem with drinking alcohol? This has been the case for me for about 4 years, I can't tolerate even a glass of wine, it makes me feel sick. Just curious if its related as I never found out why. In college I could drink without a problem.

IrishHeart - you give me some hope as my tight neck muscles are my worst symptom bc they lead to debilitating headaches! I am going to ask about physical therapy for my neck tomorrow. When I believed it was mono, I didn't think PT would do anything for me. Now I'm thinking it worth looking into.

Oh, and just to note, my vitamin d was the only thing that was relatively low at 33. Normal showed as 30-100.

Everyone else, thank you again! As of now, I'll be continuing on this journey and update you as to my progress.

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