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Member Since 17 Apr 2013
Offline Last Active Jun 07 2013 08:22 AM

Posts I've Made

In Topic: What Now? Results Of Endoscopy For Dd

24 May 2013 - 08:11 AM

Thanks for the advice and the sympathy ( I guess it was a little bit of a rant):)

Forgot to mention that I have two copies of HLA-DQ8, so she has a least one of the celiac genes.

She goes to her Dad's some weekends and longer periods over the summer. The cooler might help on the weekends and she is old enough to read label at least. She seems willing to try anything including going gluten free to get some relief so that's where I'm leaning. Just hope I can get the doctor to agree or reccomend at least a trial to help to get her Dad on board.

In Topic: How Long Does It Take For You To Feel The Effects Of Gluten?

14 May 2013 - 01:57 PM

I agree I can usually tell if I get accidentally glutened within 20 minutes. It also takes several days to get back to normal. Before I was diagnosed and was strictly gluten free, the symptoms came at random, but were usually present. Hope this helps!

In Topic: New Here And My Son's Test Results

14 May 2013 - 01:53 PM

I bet you are so relieved to finally have definitive answers. I would recommend getting his vitamin levels checked to make sure they are okay. If he has severe celiac damage he may be low in D, iron, ect.  Just my two cents :)

In Topic: Need Advice On 10Yr Dd Results Celiac Mom

19 April 2013 - 10:50 AM

Thanks to both of you for your advice. Basically her "tummy" has been bothersome 5 to 6 days out of 7 the last four months.  She has started waking up at night in pain and is missing school here and there as well. Her pain doesn't seem to be school related either she is just as likely to be sickly on the weekends. Recently she has added fatigue and muscle aches to her complaints. We go back to the GI next Friday. Hopefully they will have some ideas or accept mine.



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