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Dozey

Member Since 25 Apr 2013
Offline Last Active Jun 18 2013 01:41 PM
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Posts I've Made

In Topic: Syptoms Of Glutoning

05 June 2013 - 08:45 AM

The tTG IgA test is not the most sensitive test for picking up cases of celiac disease. According to the World Gastroenterology Guidelines for Celiac Disease, it only picks up 75-95% of all celiac cases - it could miss up to 25% of celiacs.
http://www.worldgast..._long_FINAL.pdf
 
As you know, celiac disease can lead to low B12. It is extremely common. It could takes months on the gluten-free diet for that to improve though. If you think you will have a hard time committing to the gluten-free diet, and you need to be 100% committed to get the full health benefits, then you should probably continue eating gluten and get further blood testing or an endoscopic biopsy done. The link above, on page 12, has all of the serologic tests done for celiac disease. The DGP tests are some of the best.
 
There is a good chance you have Non-celiac Gluten Intolerance /Sensitivity (NCGI) in which case there is no blood test that can diagnose it, only a positive reaction to the gluten free diet is diagnostic.  You would need to commit to many months gluten-free to notice all benefits, I would consider 3 months the minimum and 6 months would be better. NCGI can lead to low B12 too.
 
I know it's hard to have a plan of action when you feel badly but you need to make yourself choose a path, be it going gluten-free now or pursuing further testingand then going gluten-free, and commit to that path so you can move towards better health. It is so very hard to get started but once you get some momentum going it gets easier... at least that is what I have found.
 
Hang in there.


Thank you so much for all the information. I haven't decided what I want to do yet.
Jo

In Topic: Syptoms Of Glutoning

05 June 2013 - 06:38 AM

It could be gluten or it could just be your inflammed body over-reacting to something. If it is a symptom you usually got while eating gluten, I would say that was probably it. I don't know what a veg sos roll is but if it is a processed food it could have wheat - was there soy sauce involved?

I used to have symptoms of hypoglycemia before I was diagnosed. I would get quite shakey, weak, and dizzy if I hadn't eaten for 3 or more hours. Could it be something like that?

I hope you continue to feel better on the gluten-free diet as you get it to 100% gluten-free. Give yourself time to feel better. it takes the body a while to settle down.

Hi nsvmom and thank you for replying. I have had so many syptoms since becoming ill with b12 def last November, it has become really difficult to know what is causing what. The veg sos rolls are quorn based with pastry so I would imagine they aren't gluton free. I know I shouldn't have had it but I am doubting my self diagnosis, with everything else that is going on. I am just sick of feeling ill.

In Topic: Rapidly Greying Hair While On Gluten Challenge?

29 May 2013 - 12:42 AM

Hi, have you been tested for b12 deficiency. It can cause premature greying.
Jo

In Topic: Could Be Coincidence

27 May 2013 - 11:57 PM

Hi, and thank you for your replies. With having a thyroid problem, b12 def and low vit D it is difficult to know what symptom goes with what! The anxiety and agoraphobia are certainly not so bad as they were and I am managing to get out fot a short walk most days, I even managed a trip to the supermarket yesterday! Although I feel shattered again this morning. I appreciate all your help and encouragement.
Jo

In Topic: Help?! Celiac/not Celiac?

26 May 2013 - 04:04 AM

Hi, were you tested for vit B deficiency. Those symptoms are very similar. Also check vit D as this is a big problem these days with people staying indoors so much. Just a thought.
Jo