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Ksee

Member Since 01 May 2013
Offline Last Active Jun 13 2013 05:40 PM
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#873827 How Do You Know It Was Gluten?

Posted by Ksee on 10 June 2013 - 07:25 PM

Thanks all, so it's more complicated then. I assumed by the fact that it took this long in my life to find the gluten problem that was only found accidentally, that I wasn't super sensitive or it would of been more obvious. But I am super sensitive. At least I am to many other things, like household chemicals, fragrances, cosmetics, lotions and other toiletries.

I have other food sensitivities, scallops in particular is a damned shame. Beef causes lots of problems, as does pork and in the last couple of years chicken too. I have been able to eat homemade yogurt, fresh or white cheeses and eggs without noticing any problems so far. I can get away with beans as long as it's not very often.

Years ago someone got the bright idea to allergy test me. They got half way through an unpleasant process and realized I showed positive in a big way to every single site. That is when they realized I must be allergic to either the skin cleansers, the solutions used for the allergy preparations or the syringes. It was decided to stop and retest me using different processes. I declined to go through that over and over and then to take allergy shots that would never completely rid me of allergies. Maybe it was a mistake. Maybe I would of shown a pattern of allergy to gluten grains then, I don't know.   

 

I bookmarked the links, thank you. I have new glasses today and my fingers still type okay but my eyes are wishing they were closed. :) I will read those tomorrow.


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#873379 Celiacs Diagnosed As Anxiety

Posted by Ksee on 08 June 2013 - 01:48 PM

Anxiety..... of course she has anxiety. Wouldn't you be anxious if your life caused you pain? If no one seemed to notice how hard you tried or listened to you? 

However treating a symptom (alone) isn't going to help and neither is the doctor's condescension. As a parent, straighten you back, raise you chin look straight in that doctor's eye.

Tell him/her to either pay attention or you will be finding someone with the compassion due your daughter.

Say it in an even tone without raising your voice.

Don't let your gaze waver.

Do let your daughter see you stand up for her in a positive way.

Then be prepared to either discuss the situation or find another doctor but either way your daughter will know someone has her back.  Keep letting her know that and the anxiety should start getting better.

It might help to talk to a grief councilor too. It's not going to be easy to learn how to be different from the other kids since she has already been traumatized but you are on the right track now. 

Good luck, tell her we are all cheering for her :)


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#873356 Second Guessing My Gluten Problem...

Posted by Ksee on 08 June 2013 - 11:39 AM

I came off gluten, not convinced it was my problem, but after only a few days my digestive problems had improved so much it came clear. I can't say when these problems started, they were so insidious. It was only with partial relief I realized how much pain I had been in.

I am learning as I go along what symptoms may be due to gluten but I would imagine, depending on the damage, some problems will take longer and some may be permanent. 

There is no reason now to cry over the past, so I try not to think about what my life could of been if someone had recognized this before my autoimmune pituitary destruction, and damage to my eyes, among other problems. 

To answer your question, how long depends on how sick you were I suppose. 

Make sure to write all this down so you can remind yourself later how much you don't want to have to do it again.


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#872209 Thoughts On Hoda

Posted by Ksee on 02 June 2013 - 02:24 PM

I'm not taking up for anyone's ignorance so please don't take this wrong. There are people who take things to the extreme and without any understanding of nutrition or disease think gluten is another word for wheat processing in things like bread, cookies, cakes and so forth. 

These people put themselves on a "gluten free" diet because they believe it is natural and healthy without any symptoms or diagnosis. Gluten Free is a fad diet for some people. I'm not the only one to of run into this am I? These people don't do us any favors for increasing awareness or understanding.

Have you ever had a health professional look at you sideways when you said something about celiac or gluten intolerance? It's like they want to roll their eyes at you? I have had to explain that I wasn't into fad diets and if I were I would pick one that didn't require me to give up my pasta :)

I think this is the result, our disease is being minimized and reduced to the perception of overly picky squeamish people by the public. Hoda's ignorance is still ignorant but she's not the only one.


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#872090 Is Genetically Modified Wheat Common Now-Days Responsible For This Condition?

Posted by Ksee on 01 June 2013 - 05:28 PM

Captain, you quoted me three times but I still wonder if you read what I said, "transgenic wheat does exist". I continued by saying that it is not being grown for sale in the US. You posted two links, both of which referred to the same incident. The Washington Post article reported that the USDA was clearly upset and had begun a criminal investigation into that incident. The article listed the implications for the market of US wheat and stated there was no evidence any of that wheat had gotten into the food supply from the one field it was found in.

The second article reported that those fears, which I stated as the reasons why GMO wheat is not being grown for sale, were the same reasons some countries now do not want to buy US wheat. These two articles are evidence of what I said, the US does not want to damage it's market by fears from other countries so GMO wheat is not legal to grow for sale in the US.

The report from The Food Babe states it's own article to be unsubstantiated:

"Please note: It is uncertain at this time who places these warning labels on products once they are imported into the UK and this is something I am still investigating. I know it is not the grocery store themselves and not Kraft, but likely the importer/distribution company." 

The warning labels are poorly printed and obviously fixed to the boxes at some time after leaving the processing plant. In reading this article, notice the accusations of using GMO wheat were added after a meeting with Kraft that was followed by refusal of the company to have further communication with the Food Babe. She also says in the article, that she is quite angry, not only because Kraft refused to communicate with her but because of the increased income of Kraft's CEO.

Of course, everyone has a choice, believe the USDA, the Washington Post and other reputable sources or websites such as "The Food Babe". I encourage anyone to draw their own conclusions.

Captain I know, I said do a web search. I did not say that as a challenge to you or your beliefs. I was not implying what I said was common knowledge. I said that because I did a web search to make sure I was not misspeaking before I typed my response. I have no doubt someone can try to sabotage the US wheat supply in order to damage the market. I would suppose that is a form of terrorism. 

 

I made another statement in this thread no one noticed. There are some researchers who have noticed the high incidence of intolerance to gluten and are trying to find ways to identify what parts of the protein cause reaction and what could be done to modify it. I know people see science as a terrible thing and the study of genetics as the devils work but think about it for a minute. The tiniest of changes in the gluten protein means our bodies don't see glutens as offenders and no bad reaction happens. How would you feel about living in a world that changed to fit your needs?


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#869163 Can Sugar Cause Heart Palpitations?

Posted by Ksee on 16 May 2013 - 01:50 PM

Interesting. If you notice a relationship between these drinks and heart palpitations I think it's not a question of if but why? You have already noted a link between the two, now look at the ingredients and try to identify what is associated with your symptoms.

Caffeine? Food dyes? Additives and preservatives? Or just so much sugar you can't tolerate the acidity? 

At the least, and with your history, you should call your doctor. If you are having heart palpitations in new, different or increased ways, it's a reason to let the doctor know.


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#869143 Is It Worth Seeing A Dietician?

Posted by Ksee on 16 May 2013 - 01:10 PM

I agree with Gemini, it sounds like you already identified the problems but only need encouragement to follow your gut (pun intended) :)

I was saying in another thread, it wasn't hard for me to remove gluten because I already ate whole foods, fruit, vegetables, beans, eggs, dairy, single spices and so taking the grain out was easy. 

Something you can think about is learning how to make your own simple things, then you know what goes into what you eat. You may find problems resolving long before needing to spend precious money on expensive dietary appointments.  

Have you ever mentioned to inconsiderate people how they are contributing to your obvious illness right now? If someone is poisoning you without concern, and let's face it, that wording isn't an exaggeration, knowing might help you decide if there is a healthier place for you to be. Hopefully it's more a problem of youth and ignorance they will gladly help you fix.

Good Luck :)


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#868719 Battling No Food

Posted by Ksee on 14 May 2013 - 01:43 PM

Wooops?! someone just made me aware my last post ended up in a place that give the appearance of encouraging conflict. 

For clarity.... it was intended to address the person beginning this thread. I would like to hear more from that person to better respond if you wouldn't mind please when you get back to reading the thread?

Thank you


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#868460 Dr Had Me In Tears :( Could Pupps Have Been Dh?

Posted by Ksee on 13 May 2013 - 12:06 PM

Anyone who "accuses" or blames is a jerk. 


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#868456 "people With A Preexisting Condition"

Posted by Ksee on 13 May 2013 - 12:01 PM

Your statement refers to childhood immunizations, measles, mumps, rubella, hepatitis A and polio for which another method has yet to be found and the use of two (2) cultures from the 1960-70's still exist. Please understand, these are the only two cultures being used. No abortions are being used to harvest cells, no fibroblasts are being created to harvest cells. No research is being funded to allow harvest of aborted cells or to allow cells created for harvest.

Regarding the two cultures from forty years ago, the statement of position most researched and thoughtful comes from the Vatican:

 http://www.immunize....candocument.htm

Please read this entire article with as much thoughtfulness as was given to it's production. Then please let us know your thoughts. Should we stop protecting against deadly childhood diseases?

 

Again, none of this has to do with yearly influenza vaccines.


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#868339 "people With A Preexisting Condition"

Posted by Ksee on 12 May 2013 - 07:21 PM

First, there is not one "flu shot". It varies from one year to the next depending on which strains of flu are going around. Some years more than one shot is needed if a strain is recognized later than usual.

Then, some vaccines use live virus weakened to a point that can not cause sickness but will cause the body to produce antibodies. Other vaccines do not use live virus. 

Some vaccines are not injections, but tablets or nasal sprays.

Further, people with egg allergy can not take some vaccines but eggs are not used in all vaccines.

All these things are listed on package inserts and can be found on several websites by searching "influenza vaccine package insert".

If anyone decides not to get the flu vaccine, they should avoid contact with people who could be put in danger by the spread of the flu. Unvaccinated persons may be carriers, causing illness or death in "at risk" populations, small children, the elderly, pregnant women, people with compromised immune systems and chronic illnesses to name a few. 


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#868302 Is Genetically Modified Wheat Common Now-Days Responsible For This Condition?

Posted by Ksee on 12 May 2013 - 02:56 PM

nvsmom could you post a link to that please?


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#868270 "people With A Preexisting Condition"

Posted by Ksee on 12 May 2013 - 11:55 AM

Pre-existing conditions: Illness disease or treatment that may result in danger from taking the flu vaccine. This changes depending on which vaccine you receive. Go to: http://www.cdc.gov/v...ld-not-vacc.htm and scroll down for each vaccine.

If you have a milder condition, discuss with you doctor the risks of getting vaccinated and weigh those with the risks of getting sick. 36,000 people die each year from the flu.  


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#868236 Battling No Food

Posted by Ksee on 12 May 2013 - 09:38 AM

I realized one day that gluten might be a problem. The same day I identified what I had without gluten. Within a few days the rewards of gluten-free was so great that I removed it from my home, so as not to be tempted or forget. I live alone but if someone else were here I would expect them not to selfishly sabotage my health. No matter who else is around, I take responsibility to maintain my own healthy environment. 

What else is going on, that makes you feel such lack of control over your own life?


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#866965 Reputation ?

Posted by Ksee on 05 May 2013 - 10:21 AM

Ha! When I started I thought the green arrow meant "back to top". I couldn't figure out why that thing wouldn't work. But still.... I like you all, I really like you all! :D


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