Thanks so much for your feedback! I have often wondered if I am truly celiac disease, or just have a gluten intolerance-either way, I still feel horrible when I consume it, so an actual diagnosis is not that important to me. Like you, I experienced the grumpies, and the brain fog was horrible at times-I once got to work late (I'm a teacher, very regular schedule) and was shocked to find the building principal in my classroom with all of my students. It had to be explained to me that I was late, and even then, it still didn't register-I kept looking at my watch and the clock, completely not comprehending what had happened. I get up at 5:15, leave the house at 6:45, arrive at school at 7:10 every single day...and yet that morning, I went blank. Awful feeling, to say the least.
Although a diagnosis isn't necessary for me, it definitely is for my son-without it, I doubt his school will be able to make dietary accomodations for him. We also just signed off on an IEP (Individual Education Plan) for him that allows his teacher to send him to the Special Education room when he is being disruptive-the team at his school has also clearly stated that if there's no improvement in the near future, he will most likely be designated as primarily Special Ed and removed from his mainstream classroom alltogether. I believe a diagnosis would prevent that from happening, as the cause would be considered environmental and not behavioral.
There is SO much information on this site, but I've already begun to collect information to arm myself with for my son's upcoming appointment. The past few years have been so frustrating, we just want a healthy family! Thanks for the support!